ArticleJournal of healthcare management / American College of Healthcare Executives
Patients' Views About Patient Engagement and Representation in Healthcare Governance.
Article in Journal of healthcare management / American College of Healthcare Executives. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Why do people trust (or mistrust) health organizations? A systematic review.International journal for equity in health · 2026Pooled it
- Reclaiming informed consent to train mental health AI with patient data.NPJ digital medicine · 2026Article
- Personalised prevention: what patients and citizen advocates want for better engagement - a qualitative study.BMC public health · 2025Article
- Addressing barriers to care for African American men facing prostate cancer: a scoping review of navigation programs.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Measuring the strength of primary care: development of a new system of Structural Indicators for the Strength of Primary Care - SiSPC.Primary health care research & development · 2025Article
- Social participation in health - case studies from primary health care in Kosovo.BMC public health · 2024Article
- Benefits and barriers to engagement of mental health caregivers in advisory roles: Results from a cross-sectional survey.Health science reports · 2023Article
- Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative Comment on "The Rise of the Consucrat".International journal of health policy and management · 2021Article
- The patient-physician relationship: an account of the physician's perspective.Israel journal of health policy research · 2020Article
- Who represents me? A patient-derived model of patient engagement via patient and family advisory councils (PFACs).Health expectations : an international journal of public participation in health care and health policy · 2020Article
- "They heard our voice!" patient engagement councils in community-based primary care practices: a participatory action research pilot study.Research involvement and engagement · 2020Article
- The Why, Who, What, How, and When of Patient Engagement in Healthcare Organizations: A Response to Recent Commentaries.International journal of health policy and management · 2019Article
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6 authors.
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Abstract
executive summaryHealth systems increasingly engage with patient representatives on their governance boards or with patient and family advisory councils to improve care delivery. Little is known about how general patients regard those engagement activities. The objective of this study was to assess the importance of patient representation. We mailed a survey to 31,687 Medicare beneficiaries attributed to a Medicare accountable care organization. We examined relationships between respondents' views and their health characteristics and performed thematic analysis on free-text responses. Among 3,061 respondents, the majority believed that having a patient representative (74.1%) or a patient council (74.0%) mattered "some" or "a lot." The main factors respondents considered in answering were that "patients deserve a voice" (64%) and "having a patient on the [governance] board increases my trust" in this organization (46%). Our analysis of free-text responses illuminated why patient representatives are important, keys to successful engagement, and reasons behind the skepticism. This study indicates that most patients believe representation in health system governance is important, and that realizing its potential requires engagement activities that improve general patients' awareness of, and interaction with, their representatives.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.