ArticleJMIR formative research2019
Psychiatry Outpatients' Willingness to Share Social Media Posts and Smartphone Data for Research and Clinical Purposes: Survey Study.
Article in JMIR formative research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Factors that affect clinical youth engagement in digital mental health research: a qualitative sub-study nested within a prospective cohort study.BMC medical research methodology · 2025Observational
- Participant Contributions to Person-Generated Health Data Research Using Mobile Devices: Scoping Review.Journal of medical Internet research · 2025Article
- A survey on the willingness of outpatients to participate in fundus examination procedures conducted by ophthalmology training residents in China: A cross-sectional study.Health science reports · 2024Article
- Acceptability of Personal Sensing Among People With Alcohol Use Disorder: Observational Study.JMIR mHealth and uHealth · 2023Observational
- Digital Technology Use and Mental Health Consultations: Survey of the Views and Experiences of Clinicians and Young People.JMIR mental health · 2023Article
- Cross-Platform Detection of Psychiatric Hospitalization via Social Media Data: Comparison Study.JMIR mental health · 2022Article
- Artificial intelligence-informed mobile mental health apps for young people: a mixed-methods approach on users' and stakeholders' perspectives.Child and adolescent psychiatry and mental health · 2022Article
- Measuring Daily Activity Rhythms in Young Adults at Risk of Affective Instability Using Passively Collected Smartphone Data: Observational Study.JMIR formative research · 2022Article
- Maximizing the positive and minimizing the negative: Social media data to study youth mental health with informed consent.Frontiers in psychiatry · 2022Article
- Clinician Perspectives on Using Computational Mental Health Insights From Patients' Social Media Activities: Design and Qualitative Evaluation of a Prototype.JMIR mental health · 2021Article
- Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey.Journal of medical Internet research · 2021Article
- Feasibility and acceptability of monitoring personal air pollution exposure with sensors for asthma self-management.Asthma research and practice · 2021Article
- Can language use in social media help in the treatment of severe mental illness?Current research in psychiatry · 2021Article
- Digital Phenotyping and Patient-Generated Health Data for Outcome Measurement in Surgical Care: A Scoping Review.Journal of personalized medicine · 2020Article
- Designing a Clinician-Facing Tool for Using Insights From Patients' Social Media Activity: Iterative Co-Design Approach.JMIR mental health · 2020Article
- Human-Computer Interaction, Ethics, and Biomedical Informatics.Yearbook of medical informatics · 2020Review
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundPsychiatry research has begun to leverage data collected from patients' social media and smartphone use. However, information regarding the feasibility of utilizing such data in an outpatient setting and the acceptability of such data in research and practice is limited.
objectiveThis study aimed at understanding the outpatients' willingness to have information from their social media posts and their smartphones used for clinical or research purposes.
methodsIn this survey study, we surveyed patients (N=238) in an outpatient clinic waiting room. Willingness to share social media and passive smartphone data was summarized for the sample as a whole and broken down by sex, age, and race.
resultsMost patients who had a social media account and who were receiving talk therapy treatment (74.4%, 99/133) indicated that they would be willing to share their social media posts with their therapists. The percentage of patients willing to share passive smartphone data with researchers varied from 40.8% (82/201) to 60.7% (122/201) depending on the parameter, with sleep duration being the parameter with the highest percentage of patients willing to share. A total of 30.4% of patients indicated that media stories of social media privacy breaches made them more hesitant about sharing passive smartphone data with researchers. Sex and race were associated with willingness to share smartphone data, with men and whites being the most willing to share.
conclusionsOur results indicate that most patients in a psychiatric outpatient setting would share social media and passive smartphone data and that further research elucidating patterns of willingness to share passive data is needed.
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