ArticleJournal of racial and ethnic health disparities2020
Family First: Asian Americans' Attitudes and Behaviors Toward Deceased Organ Donation.
Article in Journal of racial and ethnic health disparities, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed.
- Adaptive Content Tuning of Social Network Digital Health Interventions Using Control Systems Engineering for Precision Public Health: Cluster Randomized Controlled Trial.Journal of medical Internet research · 2023Trial
- Attitudes toward Organ Donation among Japanese American Older Adults: Implications from the Open-Ended Responses.Journal of racial and ethnic health disparities · 2026Article
- A social ecological model mapping of factors shaping health personnel's attitudes toward organ donation: a scoping review.BMC health services research · 2025Article
- Family refusal rates for organ donation after brain death and after circulatory death: a single-center 6-year experience.Journal of anesthesia, analgesia and critical care · 2025Article
- Understanding organ donation refusal in the next of kin: a fifteen-year retrospective study in ten thousand potential donors.Journal of anesthesia, analgesia and critical care · 2025Article
- Reconsidering autonomy: Asian Americans' use of relational autonomy in organ donation decisions.BMC medical ethics · 2025Article
- Reconsidering Autonomy: Asian Americans' Use of Relational Autonomy in Organ Donation Decisions.Research square · 2024Article
- Organ Donation Willingness Among Asian Americans: Results from a National Study.Journal of racial and ethnic health disparities · 2023Article
- Organ and Tissue Donation Consent Model and Intent to Donate Registries: Recommendations From an International Consensus Forum.Transplantation direct · 2023Article
- Article
- An Interpretive Approach to Religious Ambiguities around Medical Innovations: The Spanish Catholic Church on Organ Donation and Transplantation (1954-2014).Qualitative sociology · 2023Article
- Culturally Tailored and Community-Based Social Media Intervention to Promote Organ Donation Awareness among Asian Americans: "Heart of Gold".Journal of health communication · 2022Article
- Factors that Influence Organ Donor Registration Among Asian American Physicians in Queens, New York.Journal of immigrant and minority health · 2022Article
- A mixed-methods examination of public attitudes toward vascularized composite allograft donation and transplantation.SAGE open medicine · 2022Article
- A Qualitative Study in Family Units on Organ Donation: Attitude, Influencing Factors and Communication Patterns.Transplant international : official journal of the European Society for Organ Transplantation · 2022Article
- Predictors of Deceased Organ Donation in the Pediatric Population.Pediatrics · 2021Article
- Long-Term Outcomes and Prognosticators of Pediatric Primary Dilated Cardiomyopathy in an Asian Cohort.Frontiers in pediatrics · 2021Article
- A Critical Ethnographic Study of Families of Brain-Dead Patients: Their Experiences and Attitudes to Organ Donation.Iranian journal of nursing and midwifery researchArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Asian Americans have substantial transplantation needs but have the lowest rates of organ donation in the USA. As the shortage of transplantable organs persists, the rate of deceased donation by Asian Americans has not kept pace with that of the general population. This report is a qualitative study of organ donation-related attitudes and beliefs of three Asian ethnic groups located in the greater Philadelphia metropolitan area: Chinese, Filipino, and Vietnamese Americans. Guided by a Community Advisory Board representing these groups, we conducted 9 focus groups with a total of 64 participants and subsequent thematic analyses. Six major themes emerged: (1) positive views about organ donation, (2) previous exposure to organ donation, (3) primacy of the family in decision making, (4) mistrust of the healthcare and donation systems, (5) religious and cultural beliefs concerning the body, and (6) isolation from mainstream American society. Although participants expressed commonalities and beliefs in line with other American racial and ethnic groups, we also identified unique beliefs, such as familial influence, religious and cultural concerns regarding body wholeness and the dead, and underlying reasons for medical mistrust, such as a belief in a black market. The study's findings challenge the dominant educational and awareness campaigns about organ donation decision making that focus on individual autonomy and overlook the need for incorporating the specific content and message delivery needs of Asian Americans. This study is the first to explore attitudes and knowledge about posthumous organ donation among US Asian American populations in at least a decade.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.