ArticleThe Journal of nursing administration2019
Patient and Family Advisory Councils for Research: Recruiting and Supporting Members From Diverse and Hard-to-Reach Communities.
Article in The Journal of nursing administration, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed.
- Engaging communities in recovery: Evaluation of a patient and family advisory committee supporting implementation of the Road to Recovery model of substance use care in British Columbia.Drug and alcohol dependence reports · 2026Article
- Design for innovation: centering the patient voice in the development of trauma clinical guidance.Trauma surgery & acute care open · 2025Article
- Barriers and Facilitators to the Recruitment and Engagement of Diverse Populations Into Patient and Family Advisory Councils: A Scoping Review.Journal of patient experience · 2025Article
- Article
- Establishing a Research-Related Patient and Family Advisory Council for a Surgical Specialty.Journal of hand surgery global online · 2024Article
- Reaching the unheard: overcoming challenges in health research with hard-to-reach populations.International journal for equity in health · 2024Review
- Patient powered research: an approach to building capacity for a hardly reached patient population to engage in cancer research.Research involvement and engagement · 2021Article
- Approaches to optimize patient and family engagement in hospital planning and improvement: Qualitative interviews.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study.JMIR formative research · 2021Article
- Patient Feedback on Research Studies: How to Interpret Feedback from the 'Aware' Patient?The patient · 2021Article
- Successfully Recruiting Adults with a Low Socioeconomic Position into Community-Based Lifestyle Programs: A Qualitative Study on Expert Opinions.International journal of environmental research and public health · 2020Article
Corrections and comments
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Authors and funding
13 authors.
Funding
Abstract
objectiveTo describe strategies to recruit and support members from hard-to-reach groups on research-focused Patient and Family Advisory Councils (PFACs).
backgroundEnsuring diverse representation of members of research PFACs is challenging, and few studies have given attention to addressing this problem.
methodsA qualitative study was conducted using 8 focus groups and 19 interviews with 80 PFAC members and leaders, hospital leaders, and researchers.
resultsRecruitment recommendations were: 1) utilizing existing networks; 2) going out to the community; 3) accessing outpatient clinics; and 4) using social media. Strategies to support inclusion were: 1) culturally appropriate communication methods; 2) building a sense of community between PFAC members; 3) equalizing roles between community members/leaders; 4) having a diverse PFAC leadership team; and 5) setting transparent expectations for PFAC membership.
conclusionIncreasing the diversity of research PFACs is a priority, and it is important to determine how best to engage groups that have been traditionally underrepresented.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.