ArticleDementia (London, England)2021
Family carers' experiences of nutritional care for people living with dementia at home: An interpretative phenomenological analysis.
Article in Dementia (London, England), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Having Their Cake and Eating it Too: An Exploratory Mixed-Methods Study on the Dietary Behaviours of Family Carers of Persons With Dementia.Dementia (London, England) · 2026Article
- Experiences of Dietetic Students Taking Part in an Online Longitudinal Dementia Educational Programme: A Qualitative Study.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2025Article
- Dietary Challenges Among Older Men Caregivers: Implications for Health Interventions.Health care science · 2025Article
- A Phenomenological Approach to Medication Adherence in Elderly Patients: A Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
- Supporting Mealtime Participation Among People Living With Dementia at Home: Challenges and Strategies for Caregivers.The Gerontologist · 2024Article
- An Exploratory Study of Nutrition Knowledge and Challenges Faced by Informal Carers of Community-Dwelling People with Dementia: Online Survey and Thematic Analysis.Geriatrics (Basel, Switzerland) · 2023Article
- Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom.Nutrients · 2022Article
- The effect of dietary patterns on mild cognitive impairment and dementia incidence among community-dwelling older adults.Frontiers in nutrition · 2022Article
- Article
- From innovation to adoption: Process-oriented holistic modelling for sensory-based assistive technologies in dementia care.Digital healthArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesFew studies have captured the experiences of family carers who manage the nutritional needs of family members living with dementia at home. The identification and management of symptoms that may affect nutritional status is often reliant upon the family carer. This interpretative phenomenological study aimed to explore the experiences and perceptions of the nutritional care of people living with dementia at home from the perspectives of the family members who support them.
methodSemi-structured interviews were conducted between October 2017 and February 2018. Participants were also asked to keep a diary of experiences for two weeks before the interview. An Interpretative Phenomenological Analysis approach was used throughout.
conclusionFamily carers make food and drink decisions daily, and feel a duty to take on the responsibility for food shopping and cooking. They are conscious about 'doing the right thing' when it comes to providing nutritional care, and some feel uncertain about the food choices they are making, particularly regarding a reliance on convenience foods. Changes in appetite, food preferences and mealtime habits related to dementia can lead to disruption affecting the dyad. It is important that family carers and people living at home with dementia are provided with adequate support regarding identifying nutritional risks, making appropriate food and drink choices and preventing the risk of malnutrition in the dyad.
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