Evidence map›Paper›PMID 31487006›Full record

ArticleAdvances in therapy2019

Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care.

Celia Oreja-Guevara, Stanca Potra, Birgit Bauer, Diego Centonze, Maria-Paz Giambastiani, Gavin Giovannoni, Jürg Kesselring, Dawn Langdon, Sarah A Morrow, Jocelyne Nouvet-Gire and 9 more

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Advances in therapy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
3.5field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 24 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 10 institutions in 7 countries.

Celia Oreja-GuevaraServicio de Neurología, Hospital Clínico San Carlos, IdISSC, Departamento de Medicina, Universidad Complutense, Madrid, Spain. orejacbn@gmail.com.
Stanca PotraMember of the MS in the 21st Century Steering Group, Bucharest, Romania.
Birgit BauerMember of the MS in the 21st Century Steering Group, Berlin, Germany.
Diego CentonzeUnit of Neurology, IRCCS Neuromed, Pozzilli, IS, Italy.
Maria-Paz GiambastianiMember of the MS in the 21st Century Steering Group, Bilbao, Spain.
Gavin GiovannoniBlizard Institute, Barts and the London School of Medicine and Dentistry, London, UK.
Jürg KesselringKliniken Valens, Valens, Switzerland.
Dawn LangdonRoyal Holloway, University of London, London, UK.
Sarah A MorrowWestern University, London, ON, Canada.
Jocelyne Nouvet-GireMember of the MS in the 21st Century Steering Group, Paris, France.
Maija PontagaMember of the MS in the 21st Century Steering Group, Riga, Latvia.
Peter RieckmannMedical Park, Loipl, Bischofswiesen, Germany.
Sven SchipplingUniversitätsspital Zürich, Zurich, Switzerland.
Nektaria AlexandriGlobal Medical Affairs, Neurology and Immunology, Merck KGaA, Darmstadt, Germany.
Jane ShanahanMember of the MS in the 21st Century Steering Group, Ascot, UK.
Heidi ThompsonCraigavon Hospital, Portadown, UK.
Pieter Van GalenMember of the MS in the 21st Century Steering Group, Brussels, Belgium.
Patrick VermerschUniversity of Lille, Lille, France.
David YeandleMember of the MS in the 21st Century Steering Group, Southampton, UK.
Craigavon Area Hospital · GBInstituto de Investigación Sanitaria del Hospital Clínico San Carlos · ESIstituto Neurologico Mediterraneo · ITMerck (Germany) · DEQueen Mary University of London · GBRoyal Holloway University of London · GBUniversité de Lille · FRUniversity Hospital of Zurich · CHValens Clinics · CHWestern University · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionEffective communication between patients and healthcare professionals (HCPs) is important to enhance outcomes in multiple sclerosis (MS). However, in practice, patients often report a disconnect in communication. Communication tools to aid patient-HCP communication have a long history of use in many chronic conditions. For example, symptom diaries have been shown to enhance outcomes in cancer, headache and sleep disorder management. MS in the 21st Century, a Steering Group of HCP specialists and patients with MS (PwMS), has created two communication tools designed for use by both patients and their HCPs.

methodsThe Steering Group first identified prominent issues in patient-HCP communication through group discussions and survey data. Following this, a series of workshops led to the development of two communication tools as potential solutions to these identified issues in communication.

resultsThe two most prominent issues identified were HCP time constraints during appointments and the misalignment of patient and HCP priorities-the communication tools developed through the workshops were created to address these. The "myMS priorities" tool [see supplementary materials] is designed to maximize the use of consultation time while the "myMS commitments" tool [see supplementary materials] aims to improve patient-HCP shared decision-making.

conclusionsThe MS in the 21st Century Steering Group adopted a broad, iterative and collaborative approach in the development of these tools to help ensure they would be as useful as possible to both HCPs and PwMS. These tools have been developed through shared patient-HCP expertise and are based on existing tools in other therapy areas as well as a review of the existing literature and data from MS in the 21st Century Steering Group surveys. The next steps will focus on the validation of these tools through testing them in real-world environments and clinical trials.

fundingMerck KGaA, Darmstadt, Germany.

Indexed as

CommunicationHealth PersonnelPatient ParticipationPractice Guidelines as TopicProfessional-Patient RelationsStandard of CareAdultAgedAged, 80 and overFemaleGermanyHumansMaleMiddle AgedMultiple SclerosisSurveys and QuestionnairesCommunication toolsMS careNeurologyShared decision-making

Identifiers

PMID31487006
PMCPMC6822792
OpenAlexW2972252679

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.