ArticleThe Journal of head trauma rehabilitation
The Experience of Caregivers Following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission.
Article in The Journal of head trauma rehabilitation. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Empowering Support for Family Members of Brain Injury Patients in the Acute Phase of Hospital Care: A Mixed-Methods Systematic Review.Journal of family nursing · 2024Pooled it
- Decompressive craniectomy in adults with moderate to severe traumatic brain injury: A systematic review and meta-analysis of randomised controlled trials.Critical care and resuscitation : journal of the Australasian Academy of Critical Care Medicine · 2026Article
- Empowering Support for Family Members of Patients With Traumatic Brain Injury During the Acute Care: Insights From Family Members and Nurses.Journal of advanced nursing · 2025Article
- Caregiver Wellness after Traumatic Brain Injury (CG-Well): Protocol for a randomized clinical trial.Contemporary clinical trials communications · 2024Article
- Biopsychosocial factors of quality of life in individuals with moderate to severe traumatic brain injury: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Thematic Analysis of Psychosocial Stressors and Adaptive Coping Strategies Among Informal Caregivers of Patients Surviving ICU Admission for Coma.Neurocritical care · 2024Article
- The Psychological Impact on Relatives of Critically Ill Patients: The Influence of Visiting Hours.Critical care explorations · 2022Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
objectivesSurvivors of moderate and severe traumatic brain injury (TBI) require substantial care, much of which is ultimately provided by friends and family. We sought to describe the unmet needs of informal caregivers.
designQualitative, semistructured interviews with informal caregivers of moderate and severe TBI survivors were conducted 72 hours, 1 month, 3 months, and 6 months after injury.
settingIntensive care unit of a level 1 trauma center.
participantsInformal caregivers were friends or family who planned to provide care for the patient. Patients were 18 years or older with a moderate to severe TBI, and not expected to imminently die of their injuries. MEASUREMENTS AND MAIN
resultsEighteen patient-caregiver dyads were enrolled. Fifty-three interviews with caregivers were completed and analyzed over the course of 6 months. Three themes were identified in the qualitative analysis: caregiver burden, caregiver health-related quality of life, and caregiver needs for information and support.
conclusionsThis study provides new information about the experience of informal caregivers during the 6 months after their friend or family member survived a moderate to severe TBI. Interventions to promote caregiving may be a substantial opportunity to improve patient-centered outcomes following TBI.
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Registered trials
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