ArticleAlzheimer's research & therapy2019
ABIDE Delphi study: topics to discuss in diagnostic consultations in memory clinics.
Article in Alzheimer's research & therapy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
22 citing papers in PubMed.
- Patients' and care partners' views on communicating the cause of dementia and related uncertainties: A qualitative study.Journal of Alzheimer's disease : JAD · 2026Article
- Individualized prediction of clinical progression to dementia using plasma biomarkers in non-demented elderly.Alzheimer's research & therapy · 2025Article
- Usability and feasibility of ADappt: a digital toolkit to support communication on diagnosis and prognosis in memory clinics.Alzheimer's research & therapy · 2025Article
- Article
- Amyloid PET disclosure in subjective cognitive decline: Patient experiences over time.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- The expectations and experiences of patients regarding the diagnostic workup at a specialized memory clinic: An interview study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Vascular cognitive impairment: When memory loss is not the biggest challenge.Dementia (London, England) · 2024Article
- Healthcare Professionals' Perspectives on Post-Diagnostic Care for People with Vascular Cognitive Impairment: When Help Is Needed in a "No-Man's Land".Journal of Alzheimer's disease : JAD · 2024Article
- Communication about diagnosis, prognosis, and prevention in the memory clinic: perspectives of European memory clinic professionals.Alzheimer's research & therapy · 2023Article
- Towards a future where Alzheimer's disease pathology is stopped before the onset of dementia.Nature aging · 2023Review
- Development and design of a diagnostic report to support communication in dementia: Co-creation with patients and care partners.Alzheimer's & dementia (Amsterdam, Netherlands) · 2022Article
- Dementia risk communication. A user manual for Brain Health Services-part 3 of 6.Alzheimer's research & therapy · 2021Review
- European Academy of Neurology/European Alzheimer's Disease Consortium position statement on diagnostic disclosure, biomarker counseling, and management of patients with mild cognitive impairment.European journal of neurology · 2021Article
- Alzheimer's disease.Lancet (London, England) · 2021Review
- Biomarker testing in MCI patients-deciding who to test.Alzheimer's research & therapy · 2021Article
- Lumbar puncture patient video increases knowledge and reduces uncertainty: An RCT.Alzheimer's & dementia (New York, N. Y.) · 2021Article
- The Cognitive Online Self-Test Amsterdam (COST-A): Establishing norm scores in a community-dwelling population.Alzheimer's & dementia (Amsterdam, Netherlands) · 2021Article
- Dutch Brain Research Registry for study participant recruitment: Design and first results.Alzheimer's & dementia (New York, N. Y.) · 2021Article
- Communicating uncertainties when disclosing diagnostic test results for (Alzheimer's) dementia in the memory clinic: The ABIDE project.Health expectations : an international journal of public participation in health care and health policy · 2020Observational
- What patients want to know, and what we actually tell them: The ABIDE project.Alzheimer's & dementia (New York, N. Y.) · 2020Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundInformation given to patients and caregivers during the clinician-patient encounter varies considerably between memory clinic professionals. Patients and caregivers express a clear desire for more information. It is unclear what information patients and caregivers value most during the diagnostic process and whether this is concordant with professionals' opinion. We aimed to identify a topic list on which health care professionals, patients, and caregivers agree that these should be discussed during diagnostic consultations in memory clinics. Further, we aimed to establish the optimal moment for each topic to be discussed during the diagnostic process.
methodsWe performed a three-round Delphi consensus study. Professionals (N = 80), patients (N = 66), and caregivers (N = 76) rated the importance of 44 informative topics through an online questionnaire. Consensus was defined as a topic rating of 6 or 7 on a 7-point Likert scale by ≥ 75% of each panel. In round 2 and 3, a survey was added to identify the optimal moment during the diagnostic process to discuss each topic.
resultsBy round 3, consensus was achieved on 17 topics divided into four categories, information about (1) diagnostic testing, (2) test results, (3) diagnosis, and (4) practical implications. Eight additional topics showed significant differences between panels. Most notable panel differences regard the risk for developing dementia and the distinction between Alzheimer's disease and dementia, which patients and caregivers evaluated as more important compared to professionals. The optimal moment to discuss topics during the diagnostic process was identified for the 17 core topics, and the eight topics with significant differences.
conclusionsWe present a core list of informative topics, which professionals, patients, and caregivers agree they should be discussed during the diagnostic process in a memory clinic. The topic list can support professionals and empower patients and caregivers during diagnostic physician-patient consultations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.