ArticleJournal of religion and health2021
Spirituality, a Path to Peace: The Experiences of Parents Who Have Children with Phenylketonuria.
Article in Journal of religion and health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Invisible but central: family caregiving as the hidden infrastructure of pediatric PKU-an integrative review.Systematic reviews · 2026Pooled it
- "In God We Trust": An Exploratory Study of the Associations Between Religiosity and the Caregiving Experiences of Parents of Children with Rare Diseases in Poland.Journal of religion and health · 2024Article
- The family caregiving; A Rogerian concept analysis of Muslim perspective & Islamic sources.Heliyon · 2024Review
- The effect of a mindfulness-based cognitive therapy program on the spiritual health of mothers of infants admitted to the neonatal intensive care unit.Frontiers in psychology · 2024Article
- Mothers' lived experience of caring for children with inborn errors of amino acid metabolism.BMC pediatrics · 2023Article
- How Do Mothers Take Care of Their Infants with Colic Pain? A Mixed-Method Study.Ethiopian journal of health sciences · 2021Article
- The Relationship Between the Stress Perceived by the Intensive Care Patient's Relatives with Their Religious Attitudes and Behaviors: Turkey Sample.Journal of religion and health · 2021Article
- How Parents Cope with the Care of a Child with Epilepsy: Based upon Grounded Theory.Ethiopian journal of health sciences · 2021Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Having a child with phenylketonuria is extremely stressful for the parents. These parents always look for solutions for negative effects of their child's disease. Parents' strategies are affected by various background factors and vary according to parents' culture, religion, education, etc. The present study was aimed at assessing the effect of spirituality on the life of parents with a PKU child, and the effect of child disease on the parents' spirituality. The study was conducted in Kerman, Iran, in 2018; 21 participants (14 mothers, 6 fathers with PKU children, and one nurse) were selected using purposive sampling. A semi-structured in-depth interview was conducted with the selected participants. The transcribed interviews were analyzed using conventional qualitative content analysis. One main theme and two categories emerged from the analyzed data. The main theme of the supportive role of spirituality consists of two categories: spiritual growth and grabbing to the string of spirituality. The first levels of spiritual growth include Modeling and considering Imams' lives, the increase in trust in God, the increase in mental and spiritual tolerance, and being close to God. The levels of Achieving spirituality include the remembrance of God, Thanking God, and giving donations. According to the results of this study, providing spiritual care by the nurses for the patient and their family is important. Nurses should pay attention to this subject because the patients and their family can achieve more relaxation and increased tolerance and higher satisfaction.
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