Evidence map›Paper›PMID 31447195›Full record

ArticlePatient education and counseling2020

Diabetes disclosure strategies in adolescents and young adult with type 1 diabetes.

Andrea K Pihlaskari, Barbara J Anderson, Sahar S Eshtehardi, Brett M McKinney, David G Marrero, Debbe Thompson, Marisa E Hilliard

Open access · greenAbstract read
In one paragraph

Article in Patient education and counseling, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
6.5field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 34 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
  4. Parents' perspectives of factors affecting parent-adolescent communication about type 1 diabetes and negotiation of self-management responsibilities.Journal of child health care : for professionals working with children in the hospital and community · 2024
    Article
  5. Nondisclosure of Type 1 Diabetes in Adolescence: A Single-Center Experience.Diabetes spectrum : a publication of the American Diabetes Association · 2024
    Article
  6. Review
  7. Article
  8. Article
  9. Patient Decision-Making About Self-Disclosure of a Type 2 Diabetes Diagnosis: A Qualitative Study.Diabetes spectrum : a publication of the American Diabetes Association · 2022
    Article
  10. Article
  11. Promoting High-Quality Health Communication Between Young Adults With Diabetes and Health Care Providers.Diabetes spectrum : a publication of the American Diabetes Association · 2021
    Article
  12. Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Andrea K PihlaskariDepartment of Pediatrics, Baylor College of Medicine and Texas Children's Hospital, 1102 Bates Ave Suite 940, Houston, TX 77030, United States. Electronic address: Dr.Pihlaskari@houstonpsychologyandwellness.com.
Barbara J AndersonDepartment of Pediatrics, Baylor College of Medicine and Texas Children's Hospital, 1102 Bates Ave Suite 940, Houston, TX 77030, United States. Electronic address: bja@bcm.edu.
Sahar S EshtehardiDepartment of Pediatrics, Baylor College of Medicine and Texas Children's Hospital, 1102 Bates Ave Suite 940, Houston, TX 77030, United States. Electronic address: sseshtehardi@uh.edu.
Brett M McKinneyDiabetes Translational Research Center, Indiana University School of Medicine, 410 West 10th St. Suite 2000A, Indianapolis, IN 46202, United States. Electronic address: brmmckin@iu.edu.
David G MarreroDiabetes Translational Research Center, Indiana University School of Medicine, 410 West 10th St. Suite 2000A, Indianapolis, IN 46202, United States. Electronic address: dgmarrero@email.arizona.edu.
Debbe ThompsonUSDA/ARS Children's Nutrition Research Center, Baylor College of Medicine, 1100 Bates Street, Houston, TX 77030, United States. Electronic address: dit@bcm.edu.
Marisa E HilliardDepartment of Pediatrics, Baylor College of Medicine and Texas Children's Hospital, 1102 Bates Ave Suite 940, Houston, TX 77030, United States. Electronic address: marisa.hilliard@bcm.edu.
Baylor College of Medicine · USIndiana University School of MedicineChildren's Nutrition Research Center at Baylor College of Medicine · US

Funding

Mentoring Behavioral Scientists for Career Development in Pediatric T1D ResearchK12DK097696 · NIDDK · BAYLOR COLLEGE OF MEDICINE · PI ANDERSON, BARBARA JANE · 2012 to 2016
$1.8M
NIDDK NIH HHS K12 DK097696
6 · The paper itself

Abstract

objectiveAdolescence and young adulthood have social and developmental challenges that can impact type 1 diabetes (T1D) management. New relationships (e.g. friends, schoolmates, dating partners, teachers, employers) introduce opportunities for disclosure of T1D status. Characterizing how adolescents and young adults (AYAs) disclose having T1D to others may help inform clinical strategies to help AYAs ensure their safety by obtaining social support.

methodsAs part of a study about diabetes health-related quality of life across the lifespan, transcriptions of semi-structured qualitative interviews with AYAs with T1D (n = 16, age 12-25 years, mean age 18.7 ± 4.9, 38% female) were coded to derive themes related to T1D disclosure.

resultsParticipants described three disclosure strategies: (1) Open Disclosure: shares T1D status in straightforward, direct manner and readily requests diabetes-related support; (2) Disclosure Hesitancy: reluctant to tell others about or actively hides having T1D; (3) Passive Disclosure: discloses T1D via other people (e.g., parents) or through others' observation of T1D management tasks.

conclusionAYAs may benefit from guidance in approaches to informing others about having T1D in different contexts. Identifying individuals' use of these strategies can inform education and intervention strategies aimed at engaging AYAs in healthy T1D-related disclosure to seek and receive support.

Indexed as

Diabetes Mellitus, Type 1AdolescentAdultChildDisclosureFemaleFriendsHumansMaleParentsQuality of LifeYoung AdultAdolescenceType 1 diabetesYoung adulthood

Identifiers

PMID31447195
PMCPMC12168200
OpenAlexW2968645880

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.