Evidence map›Paper›PMID 31446009›Full record

ArticleJournal of pain and symptom management2019

Support Network Factors Associated With Naming a Health Care Decision-Maker and Talking About Advance Care Planning Among People Living With HIV.

Dulce M Cruz-Oliver, Tuo-Yen Tseng, Mary M Mitchell, Zachary Catanzarite, Chakra Budhathoki, Thomas J Smith, Cynda H Rushton, Amy R Knowlton

Open access · bronzeAbstract read
In one paragraph

Article in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.4field-weighted citation impact, top 37% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 6 citations in OpenAlex.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 4 institutions in 1 country.

Dulce M Cruz-OliverInternal Medicine, Palliative Medicine Program, Johns Hopkins Hospital, Baltimore, Maryland, USA. Electronic address: dcruzoli@jhmi.edu.
Tuo-Yen TsengDepartment of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Mary M MitchellFriends Research Institute, Baltimore, Maryland, USA.
Zachary CatanzariteDepartment of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Chakra BudhathokiJohns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Thomas J SmithPalliative Medicine Program, JHMI, Johns Hopkins Hospital, Baltimore, Maryland, USA.
Cynda H RushtonBerman Institute of Bioethics-Research Program, Johns Hopkins School of Nursing, Maryland, USA.
Amy R KnowltonJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Johns Hopkins University · USJohns Hopkins Hospital · USFriends Research Institute · USJohns Hopkins Berman Institute of Bioethics · US

Funding

Two-Spirit Films in Indigenous Cancer HealthP30CA016056 · NCI · ROSWELL PARK CANCER INSTITUTE CORP · PI MARK G FRATTINI · 1985 to 2026
$116.6M
Vaccine Response and Immunotherapeutics SWGP30AI094189 · NIAID · JOHNS HOPKINS UNIVERSITY · PI Richard E. Chaisson · 2012 to 2026
$67.0M
Sustaining palliative care to drug users with HIV/AIDS & health disparitiesR01NR014050 · NINR · JOHNS HOPKINS UNIVERSITY · PI KNOWLTON, AMY · 2013 to 2017
$2.3M
Informal Caregiving & Medical Adherence Among HIV+ IDUsR01DA019413 · NIDA · JOHNS HOPKINS UNIVERSITY · PI KNOWLTON, AMY · 2006 to 2009
$2.2M
NCI NIH HHS P30 CA016056NIAID NIH HHS P30 AI094189NIDA NIH HHS R01 DA019413NINR NIH HHS R01 NR014050
6 · The paper itself

Abstract

contextLittle attention has been given to social environmental factors associated with advance care planning (ACP) among African Americans or people living with advanced HIV (PLHIV).

objectivesThe present study aimed to identify support network factors that affect the likelihood of naming a decision-maker and of talking to family/friends and doctors about ACP among vulnerable PLHIV.

methodsPLHIV were recruited from a large urban HIV clinic. A social support network inventory was used to calculate number of persons available for various types of support. Characteristics of network members were also collected. Multivariable logistic regression models were fit to examine associations between social network factors and ACP discussion, adjusting for age, sex, education, and total number of network members.

resultsThe sample (N = 370) was mostly African American (95%), male (56%), and 48% had less than a high school education. Almost half the sample (48%) had talked to their family/friends or doctor about ACP, and 34% had named a medical decision-maker. Adjusted analysis revealed that talking about ACP with family/friends was associated with female sex and a larger closer support network who provided health information and physical assistance. Talking to doctors about ACP was associated with larger support networks who provided physical assistance but lower numbers from whom emotional support was received. Naming a decision-maker was associated with greater numbers of network members who provided emotional support, health information, and medication adherence reminders.

conclusionThe findings revealed aspects of family/support network structures and caregiving function associated with ACP in a population with often vital yet vulnerable networks.

Indexed as

Social NetworkingSocial SupportAdultAdvance Care PlanningAgedBlack or African AmericanCaregiversClinical Decision-MakingEducational StatusFamilyFemaleHIV InfectionsHumansLongitudinal StudiesMaleMiddle Agedadvance care planningAfrican American or blackfamily or informal caregiverHIV/AIDSnaming decision-makerpalliative careSupport network

Identifiers

PMID31446009
PMCPMC6915303
OpenAlexW2969681658

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.