Evidence map›Paper›PMID 31438157›Full record

ArticleStudies in health technology and informatics2019

Understanding Patient Information Needs About Their Clinical Laboratory Results: A Study of Social Q&A Site.

Zhan Zhang, Yu Lu, Yubo Kou, Danny T Y Wu, Jina Huh-Yoo, Zhe He

Abstract read
In one paragraph

Article in Studies in health technology and informatics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Review
  7. Article
  8. Article
  9. Article
  10. Article
  11. Pregnancy-Related Information Seeking in Online Health Communities: A Qualitative Study.Diversity, divergence, dialogue : 16th international conference, iConference 2021, Beijing, China, March 17-31, 2021 : proceedings. iConference (Conference) (16th : 2021 : Online) · 2021
    Article
  12. Article
  13. Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Zhan ZhangDepartment of Information Technology, Pace University, New York, NY, USA.
Yu LuDepartment of Information Technology, Pace University, New York, NY, USA.
Yubo KouSchool of Information, Florida State University, Tallahassee, Florida, USA.
Danny T Y WuDepartment of Biomedical Informatics, University of Cincinnati, Cincinnati, OH, USA.
Jina Huh-YooDepartment of Media and Information, Michigan State University, East Lansing, MI, USA.
Zhe HeSchool of Information, Florida State University, Tallahassee, Florida, USA.

Funding

Using social networks to map and evaluate team science across CTSA hubsUL1TR001427 · NCATS · UNIVERSITY OF FLORIDA · PI MITCHELL, DUANE A. · 2015 to 2024
$37.2M
Systematic Analysis of Clinical Study Generalizability Assessment Methods with InformaticsR21AG061431 · NIA · FLORIDA STATE UNIVERSITY · PI BIAN, JIANG, HE, ZHE · 2019 to 2020
$793k
NCATS NIH HHS UL1 TR001427NIA NIH HHS R21 AG061431
6 · The paper itself

Abstract

Clinical data, such as laboratory test results, is increasingly being made available to patients through patient portals. However, patients often have difficulties understanding and acting upon the clinical data presented in portals. As such, many turn to online resources to fill their knowledge gaps and obtain actionable advice. In this work, we present a content analysis of the questions posted in a major social Q&A site to characterize lay people's general information needs concerning laboratory test results and to inform the design of patient portals for supporting patients' understanding of clinical data. We identified 15 information needs related to laboratory test results, and clustered them under four themes: understanding the results of lab test, interpreting doctor's diagnosis, learning about lab tests, and consulting the next steps. We draw on our findings to discuss design opportunities for supporting the understanding of laboratory results.

Indexed as

Clinical Laboratory ServicesPatient PortalsHumansInternetReferral and ConsultationConsumer Health InformationInformation Seeking BehaviorsPatient Portals

Identifiers

PMID31438157
PMCPMC6857529

What OpenQuestion holds

Textmetadata
LicenceTDM
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.