ArticleStudies in health technology and informatics2019
Perceptions and Preferences About Granular Data Sharing and Privacy of Behavioral Health Patients.
Article in Studies in health technology and informatics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Pooled it
- Measuring the willingness to share personal health information: a systematic review.Frontiers in public health · 2023Pooled it
- State of the art and a mixed-method personalized approach to assess patient perceptions on medical record sharing and sensitivity.Journal of biomedical informatics · 2020Pooled it
- Perspectives on Health Data Sharing Among Patients With Somatic and Mental Health Diseases: Focus Group Study.Journal of medical Internet research · 2026Article
- Privacy in perspective: research participants' priorities and concerns related to sharing data generated in human neuroscience studies.Neuroethics · 2025Article
- Service Users' Perspectives on an Integrated Electronic Care Record in Mental Health Care: Qualitative Vignette and Interview Study.JMIR medical informatics · 2025Article
- Foundations for Meaningful Consent in Canada's Digital Health Ecosystem: Retrospective Study.JMIR medical informatics · 2022Article
- What influences a person's willingness to share health information for both direct care and uses beyond direct care? Findings from a focus group study in Ireland.HRB open research · 2022Article
- Mental health professionals' perceptions on patients control of data sharing.Health informatics journal · 2020Article
- Pilot evaluation of sensitive data segmentation technology for privacy.International journal of medical informatics · 2020Article
- A pilot comparison of medical records sensitivity perspectives of patients with behavioral health conditions and healthcare providers.Health informatics journalArticle
- My data choices: Pilot evaluation of patient-controlled medical record sharing technology.Health informatics journalArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
Abstract
Little is known about data sharing preferences for care and research of behavioral health patients. Eighty-six behavioral health patients (n = 37 Latinos; n = 32 with serious mental illness) completed questionnaires, in either English or Spanish, with items assessing their views on privacy and sensitivity of health record information. Most patients (82.5%) considered mental health information as sensitive. In general, there was a direct correspondence between perceived sensitivity of information and willingness to share with all or some providers. A main motivation for sharing data with providers was improving the patient's own care (77.8%). Most participants (96.5%) indicated they would be extremely to somewhat willing to share their data for research with their care facilities and universities. Follow-up patient interviews are being conducted to further elucidate these findings.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.