SynthesisPalliative medicine2020
Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review.
Synthesis in Palliative medicine, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Surgeon Perspectives on Cleft Lip and Palate Repair in Patients With Life-Limiting and Terminal Illnesses: An ACPA Member Survey.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026Article
- Nurses' experiences of end-of-life communication with children who have life-threatening conditions in paediatric intensive care units: a qualitative descriptive study.BMC palliative care · 2026Article
- "We're teetering on unsteady ground" parents' experiences of accessing 24/7 paediatric end-of-life care: a qualitative study.BMC palliative care · 2025Article
- A mixed methods exploration of the health and caregiving experiences of fathers of children with a life-limiting condition.Palliative medicine · 2025Article
- End of life care in paediatric settings: UK national survey.BMJ supportive & palliative care · 2025Article
- Development and prospective evaluation of a machine learning model to predict serious cardiac outcomes among paediatric cardiac inpatients.BMJ digital health & AI · 2025Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Pattern of admissions and needs assessment for palliative care services among in-patients in a tertiary health facility in South-Western Nigeria.BMC palliative care · 2024Article
- Building a programme theory of a specialist paediatric palliative and hospice care programme: development process and methodological reflection.BMC palliative care · 2024Article
- Article
- Memory-making interventions for children and their families receiving pediatric palliative or bereavement care: A systematic review protocol.HRB open research · 2024Article
- Focusing on life rather than illness: the lived experience of children with life-threatening and life-limiting conditions-a qualitative study.Palliative care and social practice · 2024Article
- Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs-a scoping review.BMC palliative care · 2023Article
- Palliative Care Interventions Among Adolescents and Young Adults with Serious Illness: A Scoping Review.Clinical practice in pediatric psychology · 2023Article
- What does 'good' palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives.Palliative medicine · 2023Article
- The health of mothers of children with a life-limiting condition: A qualitative interview study.Palliative medicine · 2022Article
- "It Is a Whole Different Life from the Life I Used to Live": Assessing Parents' Support Needs in Paediatric Palliative Care.Children (Basel, Switzerland) · 2022Article
- Parents' experiences of initiation of paediatric advance care planning discussions: a qualitative study.European journal of pediatrics · 2022Article
- Building capability in paediatric palliative care and enhancing education through the voice of parents: the Quality of Care Collaborative Australia.Palliative care and social practice · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundPalliative care for children and young people is a growing global health concern with significant resource implications. Improved understanding of
aimThe aim is to investigate beneficial outcomes in palliative care from the perspective of children and families and the contexts and hidden mechanisms through which these outcomes can be achieved.
designThis is a systematic realist review following the RAMESES standards. A protocol has been published in PROSPERO (registration no: CRD42018090646). DATA SOURCES: An iterative literature search was conducted over 2 years (2015-2017). Empirical research and systematic reviews about the experiences of children and families in relation to palliative care were included.
resultsSixty papers were included. Narrative synthesis and realist analysis led to the proposal of context-mechanism-outcome configurations in four conceptual areas: (1) family adaptation, (2) the child's situation, (3) relationships with healthcare professionals and (4) access to palliative care services. The presence of two interdependent contexts, the 'expert' child and family and established relationships with healthcare professionals, triggers mechanisms, including advocacy and affirmation in decision-making, which lead to important outcomes including an ability to place the emphasis of care on lessening suffering. Important child and family outcomes underpin the delivery of palliative care.
conclusionPalliative care is a complex, multifactorial intervention. This review provides in-depth understanding into important contexts in which child and family outcomes can be achieved so that they benefit from palliative care and should inform future service development and practice.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.