ArticleBMC geriatrics2019
Was it worth it? Older adults' experiences of participating in a population-based cohort study - a focus group study.
Article in BMC geriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed.
- Does the feedback of blood results in observational studies influence response and consent? A randomised study of the Understanding Society Innovation Panel.BMC medical research methodology · 2023Trial
- "Researcher" bias: How our assumptions on technology affect research of older adults.Frontiers in public health · 2022Article
- Research as an essentiality beyond one's own competence: an interview study on frail older people's view of research.Research involvement and engagement · 2021Article
- Recruitment and retention of underrepresented and vulnerable populations to research.Public health nursing (Boston, Mass.) · 2021Article
- Participants' Comprehension of the Informed Consent in an Epidemiological Study on Dementia Prevalence: A Qualitative Study.Frontiers in psychiatry · 2021Article
- Article
- Rationale for participation in venous leg ulcer clinical research: Patient interview study.International wound journal · 2020Article
- Cohorts as collections of bodies and communities of persons: insights from the SEARCH010/RV254 research cohort.International health · 2020Article
- Challenging oneself on the threshold to the world of research - frail older people's experiences of involvement in research.BMC geriatrics · 2020Article
- Exploring parents' attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study.Scars, burns & healingArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAt present, we know relatively little about priorities and problems with topics that older adults experience when completing different examinations in longitudinal population-based studies. To examine these topics, research must be adapted to investigate the meanings, motivations, and interpretations of the individual participants themselves. Therefore, the present study aimed to explore older adults' motives, understandings and experiences regarding participating in the Gothenburg H70 Birth Cohort Studies (the H-70 study).
methodsFocus group discussions were used. A total of thirty-eight persons, 19 women and 19 men participated in nine focus groups. A strategic sampling technique was used to ensure that the focus group participants represented the larger population.
resultsThe results supported the overall theme: "It was well worth the effort," which summarized how the participants felt about the population health study. The following specific themes were also identified: an intense event, for the benefit of oneself and others, confidence in health research and the researcher, key decisions about test outcomes and the survey raising questions and providing few answers.
conclusionsKnowledge of priorities and problems with topics experienced by older adults completing different examinations when participating in longitudinal population-based studies is crucial for research to improve the health and wellbeing of older people. To date, older people's involvement in population-based cohort studies has largely been as research subjects. This study is a first step toward the participants taking a more active part by allowing them to share their experiences which can be used to improve the research procedures. This requires the participation of older adults in collaboration with the researchers, to ensure the quality of longitudinal studies of older adults. Therefore, our intention when it comes to future research will be to involve older adults-the target group-in the research procedure.
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