ArticleInternational journal of environmental research and public health2019
Health-Related Participatory Research in American Indian and Alaska Native Communities: A Scoping Review.
Article in International journal of environmental research and public health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- Sharing Back, Listening Forward: Participatory Dissemination in a Tribal Community.Journal of participatory research methods · 2026Article
- Use of Indigenous-Based Methodologies to Enhance the Understanding of Local Context in Ugandan Communities: Protocol for a Mixed Methods Study.JMIR research protocols · 2025Article
- Trusted partners, community priorities, and data protections: requirements for precision medicine research with Alaska Native peoples.Journal of community genetics · 2025Article
- Community-engaged artificial intelligence: an upstream, participatory design, development, testing, validation, use and monitoring framework for artificial intelligence and machine learning models in the Alaska Tribal Health System.Frontiers in artificial intelligence · 2025Article
- Diminished Returns of Educational Attainment on Hypertension Prevalence among American Indian and Alaska Native Adults: National Health Interview Survey 2023.Global journal of cardiovascular diseases · 2025Article
- Increased community engagement of Indigenous Peoples in dementia research leads to higher context relevance of results.Dementia (London, England) · 2024Review
- Implementing community-engaged pharmacogenomics in Indigenous communities.Nature communications · 2024Article
- Enhancing Health Research Results Dissemination for American Indian and Alaska Native Communities through Indigenous Community-Centered Design.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Teacher and Caregiver Perspectives on Water Is K'é: An Early Child Education Program to Promote Healthy Beverages among Navajo Children.International journal of environmental research and public health · 2023Article
- Indigenous Elder-centered methodology: research that decolonizes and indigenizes.AlterNative (Auckland, N.Z. : 2005) · 2023Article
- Indigenous Smoking Behaviors in Olmsted County, Minnesota: A Longitudinal Population-Based Study.Mayo Clinic proceedings · 2022Article
- Recruitment, retention, and intervention adherence for a chronic illness self-management intervention with the Apsáalooke Nation.Public health review · 2022Article
- Extending Research Protections to Tribal Communities.The American journal of bioethics : AJOB · 2021Article
- Increasing health equity through biospecimen research: Identification of factors that influence willingness of Native Americans to donate biospecimens.Preventive medicine reports · 2021Article
- What do you mean by engagement? - evaluating the use of community engagement in the design and implementation of chronic disease-based interventions for Indigenous populations - scoping review.International journal for equity in health · 2021Article
- Perspectives on Genetic Research: Results From a Survey of Navajo Community Members.Frontiers in genetics · 2021Article
- Community Perspectives on Communicating About Precision Medicine in an Alaska Native Tribal Health Care System.Frontiers in communication · 2020Article
- Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.Nature reviews. Genetics · 2020Review
- Power Sharing, Capacity Building, and Evolving Roles in ELSI: The Center for the Ethics of Indigenous Genomic Research.Collaborations (Coral Gables, Fla.) · 2020Article
- Guidance for Genuine Collaboration: Insights from Academic, Tribal, and Community Partner Interviews on a New Research Partnership.International journal of environmental research and public health · 2019Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
A scoping review was conducted to assess the state of the literature on health-related participatory research involving American Indian and Alaska Native communities. Online databases were searched for relevant articles published between 1/1/2000 and 5/31/2017. 10,000+ data points relevant to community-level engagement in and regulation of research, community research capacity and cultural adaptation were extracted from 178 articles. Community engagement varied across study components: 136 (76%) articles reported community participation in research-related meetings and other events and 49 (27%) articles reported community involvement in initiation of research. 156 (88%) articles reported use of community-level tools to guide or regulate research. 93 (52%) articles reported that community members received research-related training. 147 (82%) articles described some type of cultural adaptation. Across all articles, data points on community engagement were not reported in 3061 (40%) out of 7740 cases. Findings suggest a need for increased community engagement in early stages of the research process and for reporting guidelines for participatory research involving American Indian and Alaska Native communities. There is also need to further existing research on the impact of different components of participatory research on process and outcome measures and to develop funding mechanisms that account for the time and resource intensive nature of participatory research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.