ArticleJournal of pain and symptom management2020
Seven Types of Uncertainty When Clinicians Care for Pediatric Patients With Advanced Cancer.
Article in Journal of pain and symptom management, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review.Pediatric blood & cancer · 2022Pooled it
- Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review.Palliative medicine · 2020Pooled it
- What aspects of clinical uncertainty are addressed by published competencies in evidence-based medicine? A scoping review.BMJ open · 2026Article
- Hope and Uncertainty in Prognostic Discussions.Pediatrics · 2026Article
- Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice.BMC palliative care · 2026Article
- Pediatric Oncology Hospice: A Comprehensive Review.The American journal of hospice & palliative care · 2024Review
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Uncertainty in serious illness: A national interdisciplinary consensus exercise to identify clinical research priorities.PloS one · 2024Article
- Perceptions of physicians caring for pediatric patients with cancer in Europe: insights into the use of palliative care, its timing, and barriers to early integration.Frontiers in oncology · 2024Article
- Oncologist approaches to communicating uncertain disease status in pediatric cancer: a qualitative study.BMC cancer · 2022Article
- Characterizing uncertainty in goals-of-care discussions among black and white patients: a qualitative study.BMC palliative care · 2022Article
- A conceptual model of barriers and facilitators to primary clinical teams requesting pediatric palliative care consultation based upon a narrative review.BMC palliative care · 2019Review
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
contextClinicians deciding whether to refer a patient or family to specialty palliative care report facing high levels of uncertainty. Most research on medical uncertainty has focused on prognostic uncertainty. As part of a pediatric palliative referral intervention for oncology teams we explored how uncertainty might influence palliative care referrals.
objectivesTo describe distinct meanings of the term "uncertainty" that emerged during the qualitative evaluation of the development and implementation of an intervention to help oncologists overcome barriers to palliative care referrals.
methodsWe conducted a phenomenological qualitative analysis of "uncertainty" as experienced and described by interdisciplinary pediatric oncology team members in discussions, group activities and semistructured interviews regarding the introduction of palliative care.
resultsWe found that clinicians caring for patients with advanced cancer confront seven broad categories of uncertainty: prognostic, informational, individual, communication, relational, collegial, and inter-institutional. Each of these kinds of uncertainty can contribute to delays in referring patients to palliative care.
conclusionVarious types of uncertainty arise in the care of pediatric patients with advanced cancer. To manage these forms of uncertainty, providers need to develop strategies and techniques to handle professionally challenging situations, communicate bad news, manage difficult interactions with families and colleagues, and collaborate with other organizations.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.