ArticleJournal of pain and symptom management2019
End-of-Life Concerns and Experiences of Living With Advanced Breast Cancer Among Medically Underserved Women.
Article in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Relevance and consequence of economic and social resources of severely ill persons and their informal caregivers at the end-of-life: a systematic review of qualitative studies.BMC palliative care · 2025Pooled it
- A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness.Palliative medicine · 2024Pooled it
- Psychosocial experiences of breast cancer survivors: a meta-review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Exploring the experiences of women living with metastatic breast cancer [MBC]: A systematic review of qualitative evidence.PloS one · 2024Pooled it
- Palliative care, socioeconomic position, and end-of-life cancer quality outcomes: a mediation analysis.EClinicalMedicine · 2026Article
- The end of life experiences of people living with socio-economic deprivation in the developed world: an integrative review.BMC palliative care · 2022Review
- Exploring access to care from the perspective of patients with breast cancer: A qualitative study.Cancer medicine · 2022Article
- Patient Perspectives on the Financial Costs and Burdens of Breast Cancer Surgery.JCO oncology practice · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
contextBreast cancer morbidity and mortality disproportionately affect medically underserved women. Most studies of the experience of living with advanced breast cancer do not focus on this population. A deeper understanding of racial/ethnic minorities' and low-income patients' experiences is needed to reduce breast cancer health and health care disparities.
objectivesThis qualitative, community-based participatory research study explores the lived experiences of medically underserved women with advanced breast cancer.
methodsWe conducted in-depth, semistructured interviews with low-income patients from a community clinic and safety-net hospital, focusing on issues related to advanced breast cancer and end of life. Six team members independently coded transcripts, jointly reconciled coding differences, and identified key themes.
resultsAll 63 participants (83% response rate) had an income ≤200% of the federal poverty level; 68% identified as a racial/ethnic minority. Four predominant themes emerged: compounding of pre-existing financial distress, perceived bias/lack of confidence in medical care received, balancing personal needs with the needs of others, and enhanced engagement with sources of life meaning.
conclusionParticipants resiliently maintained engaged lives yet described extreme financial duress and perceived provider bias, which are known contributors to worse quality of life and health outcomes. Participants downplayed their desire to discuss dying to accommodate pressure to "stay positive" and to mitigate others' discomfort. Improving care for underserved women with advanced cancer will require addressing disparities from screening through hospice, developing personalized opportunities to discuss death and dying, and enhancing access to and affordability of medical and social support.
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