ArticleEpilepsia2019
Epilepsy Journey: A proof of concept trial of a Web-based executive functioning intervention for adolescents with epilepsy.
Article in Epilepsia, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Digital psychological interventions in youth with neurological disorders: a systematic review.Journal of pediatric psychology · 2026Pooled it
- Working Memory in Pediatric Epilepsy: A Systematic Review and Meta-Analysis.Neuropsychology review · 2021Pooled it
- Trial
- Usability Across 3 mHealth Problem-Solving Training Interventions for Diverse Neurodevelopmental and Neurological Populations: Multicase Usability Evaluation.JMIR human factors · 2026Article
- Epilepsy journey 2.0 study design and methods: A randomized trial of an executive functioning intervention for adolescents with epilepsy.Contemporary clinical trials communications · 2026Article
- Intervention to reduce barriers to type 1 diabetes self-management: Diabetes Journey study design and participant characteristics.Contemporary clinical trials · 2025Article
- Co-production of the 'EPIC' multidimensional tool-kit to support neurodivergent children and young people at home and school: a feasibility and pilot study.Pilot and feasibility studies · 2024Article
- The implementation of EMI-Heart, a family-tailored early motor intervention in infants with complex congenital heart disease, in practice: a feasibility RCT.Pilot and feasibility studies · 2024Article
- Article
- Uncovering Key Elements of an Executive Functioning Intervention in Adolescents: Epilepsy Journey.Clinical practice in pediatric psychology · 2022Article
- [Telerehabilitation of Subjects with Neurodevelopmental Disorders During Confinement due to COVID-19].Revista colombiana de psiquiatria · 2022Article
- Digital Intervention for the Management of Alzheimer's Disease.Current Alzheimer research · 2022Review
- JPP Student Journal Club Commentary: Executive Functioning Intervention in Epilepsy: Implications for Other Pediatric Chronic Health Conditions.Journal of pediatric psychology · 2021Article
- Pilot Executive Functioning Intervention in Epilepsy: Behavioral and Quality of Life Outcomes.Journal of pediatric psychology · 2021Article
- Telepsychotherapy With Children and Families: Lessons Gleaned From Two Decades of Translational Research.Journal of psychotherapy integration · 2020Article
- Supporting Treatment Adherence Regimens in young children with epilepsy and their families: Trial design and baseline characteristics.Contemporary clinical trials · 2020Article
Corrections and comments
- Erratum issuedCorrigendum.2020
Authors and funding
7 authors.
Funding
Abstract
objectiveTo examine the preliminary feasibility and acceptability of a Web-based program, Epilepsy Journey, to improve executive function behaviors in adolescents with epilepsy.
methodsWe conducted a proof of concept single-arm pilot trial of Epilepsy Journey with 31 adolescents (average age = 15.3 ± 1.3 years) who had an epilepsy diagnosis and executive function (EF) deficits on the caregiver-report version of the Behavior Rating Inventory of Executive Function (BRIEF). Epilepsy Journey coupled a gamified problem-solving website comprised of 10 learning modules targeting EF deficits (eg, working memory, organization, problem-solving) with Skype sessions with a trained therapist. Outcomes included feasibility (attrition, sessions completed) and acceptability (satisfaction ratings). Exploratory analyses examined changes in caregiver-, self-, and teacher-reported BRIEF scores from baseline to posttreatment and at 2- and 5-month follow-ups.
resultsSeventy-nine percent of participants completed the program. Satisfaction was high, with 97% of caregivers and adolescents rating the program as helpful and indicating they would recommend it to others. Caregivers and adolescents reported global improvements on the BRIEF, with caregivers reporting significant improvements on all BRIEF subscales. EF symptoms rebounded slightly between the 2- and 5-month follow-ups for some of the self- and caregiver-reported BRIEF scales. Notably, clinically meaningful improvements (eg, clinical/subclinical to normative levels) were reported for several caregiver-reported BRIEF subscales, including the Global Executive Composite (62% to 33-34%) and Metacognitive Index (74% to 41-42%) from baseline to 2- and 5-month follow-up. SIGNIFICANCE: Findings suggest that a Web-based problem-solving intervention tailored to EF deficits for adolescents with epilepsy is both feasible and acceptable and may contribute to improvements in EF behaviors across domains.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.