ArticleBMJ open2019
Collaborative design of a decision aid for stroke survivors with multimorbidity: a qualitative study in the UK engaging key stakeholders.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 3 syntheses or guidelines pooled it, 41 citations in OpenAlex.
- Decision aids for the care of patients with multimorbidity: a systematic review.BMC primary care · 2025Pooled it
- Co-designing care for multimorbidity: a systematic review.BMC medicine · 2024Pooled it
- Pooled it
- Shared Decision-Making Supported by Outcome Information During Discharge Planning of Patients Hospitalized With Stroke.Neurology. Clinical practice · 2026Article
- Pharmacist-Led Patient Education in Secondary Stroke Prevention: A Systematic Review.The Malaysian journal of medical sciences : MJMS · 2025Review
- A scoping review of patient and public involvement in empirical stroke research.International journal of stroke : official journal of the International Stroke Society · 2024Article
- Learning health systems on the front lines to strengthen care against future pandemics and climate change: a rapid review.BMC health services research · 2024Review
- Review
- Conceptualizing learning health systems: A mapping review.Learning health systems · 2023Article
- Development of a patient decision aid for discharge planning of hospitalized patients with stroke.BMC neurology · 2022Article
- Designing for Dissemination and Sustainability to Promote Equitable Impacts on Health.Annual review of public health · 2022Review
- The Science of Learning Health Systems: Scoping Review of Empirical Research.JMIR medical informatics · 2022Article
- What influences informal caregivers' risk perceptions and responses to home care safety of older adults with disabilities: A qualitative study.Frontiers in public health · 2022Article
- Public Health and Risk Communication During COVID-19-Enhancing Psychological Needs to Promote Sustainable Behavior Change.Frontiers in public health · 2020Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 2 countries.
Funding
Abstract
objectivesEffective secondary stroke prevention strategies are suboptimally used. Novel development of interventions to enable healthcare professionals and stroke survivors to manage risk factors for stroke recurrence are required. We sought to engage key stakeholders in the design and evaluation of an intervention informed by a learning health system approach, to improve risk factor management and secondary prevention for stroke survivors with multimorbidity.
designQualitative, including focus groups, semistructured interviews and usability evaluations. Data was audio recorded, transcribed and coded thematically.
participantsStroke survivors, carers, health and social care professionals, commissioners, policymakers and researchers.
settingStroke survivors were recruited from the South London Stroke Register; health and social care professionals through South London general practices and King's College London (KCL) networks; carers, commissioners, policymakers and researchers through KCL networks.
results53 stakeholders in total participated in focus groups, interviews and usability evaluations. Thirty-seven participated in focus groups and interviews, including stroke survivors and carers (n=11), health and social care professionals (n=16), commissioners and policymakers (n=6) and researchers (n=4). Sixteen participated in usability evaluations, including stroke survivors (n=8) and general practitioners (GPs; n=8). Eight themes informed the collaborative design of DOTT (Deciding On Treatments Together), a decision aid integrated with the electronic health record system, to be used in primary care during clinical consultations between the healthcare professional and stroke survivor. DOTT aims to facilitate shared decision-making on personalised treatments leading to improved treatment adherence and risk control. DOTT was found acceptable and usable among stroke survivors and GPs during a series of evaluations.
conclusionsAdopting a user-centred data-driven design approach informed an intervention that is acceptable to users and has the potential to improve patient outcomes. A future feasibility study and subsequent clinical trial will provide evidence of the effectiveness of DOTT in reducing risk of stroke recurrence.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.