ArticleYearbook of medical informatics2019
The French Health Data Hub and the German Medical Informatics Initiatives: Two National Projects to Promote Data Sharing in Healthcare.
Article in Yearbook of medical informatics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed.
- Artificial Intelligence Across the Drug Development Lifecycle.Medical sciences (Basel, Switzerland) · 2026Review
- Perspectives on Health Data Sharing Among Patients With Somatic and Mental Health Diseases: Focus Group Study.Journal of medical Internet research · 2026Article
- Validation of algorithms for identifying people living with HIV in French medico-administrative databases: implications for HIV surveillance.BMC medical research methodology · 2026Article
- Generalizability of clinical prediction models in mental health.Molecular psychiatry · 2025Observational
- A quantitative analysis of the use of anonymization in biomedical research.NPJ digital medicine · 2025Article
- Ensuring General Data Protection Regulation Compliance and Security in a Clinical Data Warehouse From a University Hospital: Implementation Study.JMIR medical informatics · 2025Article
- Empowering Health Care Actors to Contribute to the Implementation of Health Data Integration Platforms: Retrospective of the medEmotion Project.Journal of medical Internet research · 2025Article
- Provenance Information for Biomedical Data and Workflows: Scoping Review.Journal of medical Internet research · 2024Article
- Evaluating and Enhancing the Fitness-for-Purpose of Electronic Health Record Data: Qualitative Study on Current Practices and Pathway to an Automated Approach Within the Medical Informatics for Research and Care in University Medicine Consortium.JMIR medical informatics · 2024Article
- Clinical Research Informatics: a Decade-in-Review.Yearbook of medical informatics · 2024Review
- Implementing a Biomedical Data Warehouse From Blueprint to Bedside in a Regional French University Hospital Setting: Unveiling Processes, Overcoming Challenges, and Extracting Clinical Insight.JMIR medical informatics · 2024Article
- Ethical and social implications of public-private partnerships in the context of genomic/big health data collection.European journal of human genetics : EJHG · 2024Article
- From data strategy to implementation to advance cancer research and cancer care: A French comprehensive cancer center experience.PLOS digital health · 2023Article
- Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.European journal of human genetics : EJHG · 2023Article
- The Challenges of Implementing Comprehensive Clinical Data Warehouses in Hospitals.International journal of environmental research and public health · 2022Article
- Article
- Leveraging National Claims and Hospital Big Data: Cohort Study on a Statin-Drug Interaction Use Case.JMIR medical informatics · 2021Article
- Approaches and Criteria for Provenance in Biomedical Data Sets and Workflows: Protocol for a Scoping Review.JMIR research protocols · 2021Article
- Knowledge bases and software support for variant interpretation in precision oncology.Briefings in bioinformatics · 2021Article
- Initiatives, Concepts, and Implementation Practices of FAIR (Findable, Accessible, Interoperable, and Reusable) Data Principles in Health Data Stewardship Practice: Protocol for a Scoping Review.JMIR research protocols · 2021Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe diversity and volume of health data have been rapidly increasing in recent years. While such big data hold significant promise for accelerating discovery, data use entails many challenges including the need for adequate computational infrastructure and secure processes for data sharing and access. In Europe, two nationwide projects have been launched recently to support these objectives. This paper compares the French Health Data Hub initiative (HDH) to the German Medical Informatics Initiatives (MII).
methodWe analysed the projects according to the following criteria: (i) Global approach and ambitions, (ii) Use cases, (iii) Governance and organization, (iv) Technical aspects and interoperability, and (v) Data privacy access/data governance.
resultsThe French and German projects share the same objectives but are different in terms of methodologies. The HDH project is based on a top-down approach and focuses on a shared computational infrastructure, providing tools and services to speed projects between data producers and data users. The MII project is based on a bottom-up approach and relies on four consortia including academic hospitals, universities, and private partners.
conclusionBoth projects could benefit from each other. A Franco-German cooperation, extended to other countries of the European Union with similar initiatives, should allow sharing and strengthening efforts in a strategic area where competition from other countries has increased.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.