Evidence map›Paper›PMID 31416449›Full record

ArticleOrphanet journal of rare diseases2019

Correction to: Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

Libby Wood, Guillaume Bassez, Corinne Bleyenheuft, Craig Campbell, Louise Cossette, Aura Cecilia Jimenez-Moreno, Yi Dai, Hugh Dawkins, Jordi Díaz-Manera, Celine Dogan and 29 more

Abstract readPublished Erratum
PubMed Full text at PMC Publisher
In one paragraph

Article in Orphanet journal of rare diseases, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

39 authors.

Libby WoodInstitute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, UK. libby.wood@ncl.ac.uk.
Guillaume BassezCentre de Référence des Maladies Neuromusculaires, Hôpital Henri Mondor, Paris, France.
Corinne BleyenheuftScientific Institute of Public Health, Brussels, Belgium.
Craig CampbellWestern University, London, Canada.
Louise CossetteCentre de recherche du CHU de Québec, Université Laval, Quebec, Canada.
Aura Cecilia Jimenez-MorenoInstitute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, UK.
Yi DaiDepartment of Neurology, Peking Union Medical College Hospital, Chinese Academy of Medical Sciences, Beijing, China.
Hugh DawkinsOffice of Population Health Genomics, Perth, Western Australia.
Jordi Díaz-ManeraNeuromuscular disorders Unit, Hospital de la Santa Creu I Sant Pau, Barcelona, Spain.
Celine DoganCentre de Référence des Maladies Neuromusculaires, Hôpital Henri Mondor, Paris, France.
Rasha El SherifNeuromuscular & Neuro-genetics Unit, Air Hospital, Cairo, Egypt.
Barbara FossatiU.O. Neurology and Stroke Unit, IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy.
Caroline GrahamOffice of Population Health Genomics, Perth, Western Australia.
James HilbertDepartment of Neurology, University of Rochester Medical Center, Rochester, NY, USA.
Kristinia KastrevaDepartment of Neurology, Alexandrovska University Hospital, Medical University, Sofia, Bulgaria.
En KimuraDepartment of Promoting Clinical Trial and Translational Medicine, National Center for Neurology and Psychiatry, Translational Medical Center, Kodaira, Japan.
Lawrence KorngutUniversity of Calgary, Calgary, Canada.
Anna Kostera-PruszczykDepartment of Neurology, Medical University of Warsaw, Warszawa, Poland.
Christopher LindbergUniversity Hospital Örebro, Örebro, Sweden.
Bjorn LindvallUniversity Hospital Örebro, Örebro, Sweden.
Elizabeth LuebbeDepartment of Neurology, University of Rochester Medical Center, Rochester, NY, USA.
Anna LusakowskaDepartment of Neurology, Medical University of Warsaw, Warszawa, Poland.
Radim MazanecUniversity Hospital Prague- Motol and Charles University Prague, Prague, Czech Republic.
Giovani MeolaU.O. Neurology and Stroke Unit, IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy.
Liannna OrlandoMuscular Dystrophy Association, Chicago, USA.
Masanori P TakahashiDepartment of Functional Diagnostic Science, Osaka University Graduate School of Medicine, Suita, Japan.
Stojan PericNeurology Clinic, School of Medicine, University of Belgrade, Belgrade, Serbia.
Jack PuymiratCentre de recherche du CHU de Québec, Université Laval, Quebec, Canada.
Vidosava Rakocevic-StojanovicNeurology Clinic, School of Medicine, University of Belgrade, Belgrade, Serbia.
Miriam RodriguesNeurology, Auckland City Hospital, Private Bag 92024, Auckland, 1142, New Zealand.
Richard RoxburghNeurology, Auckland City Hospital, Private Bag 92024, Auckland, 1142, New Zealand.
Benedikt SchoserDepartment of Neurology, Friedrich-Baur-Institute, Klinikum München, Munich, Germany.
Sonia SegoviaCentro de Investigación Biomédica en Red en Enfermedades Raras (CIBERER), Valencia, Spain.
Andriy ShatilloPsychiatry and Narcology, Academy of medical science of Ukraine, Institute of Neurology, Kharkiv, Ukraine.
Simone ThieleDepartment of Neurology, Friedrich-Baur-Institute, Klinikum München, Munich, Germany.
Ivailo TournevDepartment of Neurology, Alexandrovska University Hospital, Medical University, Sofia, Bulgaria.
Baziel van EngelenRadboud University Nijmegen Medical Centre, Nijmegen, Netherlands.
Stanislav VohankaUniversity Hospital and Masaryk University Brno, Brno, Czech Republic.
Hanns LochmüllerDepartment of Neuropediatrics and Muscle Disorders, Medical Center, Faculty of Medicine, University of Freiburg, Freiburg, Germany.

Funding

Medical Research Council G1002274
6 · The paper itself

Abstract

The original version of this article [1] unfortunately included an error to an author's name. Author Jordi Díaz-Manera was erroneously presented as Jorge Alberto Diaz Manera. The correct author name has been included in the author list of this Correction article.

Identifiers

PMID31416449
PMCPMC6696685

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.