ArticleCanadian family physician Medecin de famille canadien2019
Patient perspectives on routinely being asked about their race and ethnicity: Qualitative study in primary care.
Article in Canadian family physician Medecin de famille canadien, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 19 citations in OpenAlex.
- Racism in Inuit experiences in healthcare: findings from an environmental scan.International journal of circumpolar health · 2026Review
- Implementing the screening for poverty and related social determinants and intervening to improve knowledge of and links to resources (SPARK) in primary care clinics across Canada.Family practice · 2026Article
- Evaluating the impact of discordant and missing demographic information on population health assessments using linked electronic health records and Census Bureau microdata.PLOS digital health · 2026Article
- Narratives before numbers: Reimagining conversations about race, ethnicity, and ancestry information in genetic counseling practice.Journal of genetic counseling · 2025Article
- Advancing Health Equity Through Primary Care: Protocol for the Spread, Scale, and Multimethod Developmental Evaluation of the Deep End Canada Network.JMIR research protocols · 2025Article
- Article
- Collecting Data on the Social Determinants of Health to Advance Health Equity in Cancer Care in Canada: Patient and Community Perspectives.Current oncology (Toronto, Ont.) · 2025Article
- Factors associated with pediatric ophthalmology follow-up adherence before and during the COVID-19 pandemic.Journal of AAPOS : the official publication of the American Association for Pediatric Ophthalmology and Strabismus · 2024Article
- Ancestry, race and ethnicity: the role and relevance of language in clinical genetics practice.Journal of medical genetics · 2024Article
- Screening for poverty and related social determinants to improve knowledge of and links to resources (SPARK): development and cognitive testing of a tool for primary care.BMC primary care · 2023Article
- Article
- Considerations for collecting data on race and Indigenous identity during health card renewal across Canadian jurisdictions.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2023Article
- Article
- Conceptualising fairness: three pillars for medical algorithms and health equity.BMJ health & care informatics · 2022Review
- The Need for Ethnoracial Equity in Artificial Intelligence for Diabetes Management: Review and Recommendations.Journal of medical Internet research · 2021Review
- Identifying visible minorities or racialized persons on surveys: can we just ask?Canadian journal of public health = Revue canadienne de sante publique · 2020Article
- Evaluating Patient Experience with Integrated Virtual Care (IVC), a Hybrid Primary Care Model in Rural Ontario, Canada: A Cross-Sectional Survey.Journal of primary care & community healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo understand patients' perspectives on responding to a question about their race and ethnicity in a primary care setting.
designQualitative study using semistructured individual interviews conducted between May and July 2016.
settingAn academic family health team in Toronto, Ont, where collection of sociodemographic data has been routine since 2013.
participantsTwenty-seven patients from 5 of the 6 clinic sites of the family health team, ranging in age, sex, educational background, and immigration status.
methodsSemistructured interviews were conducted with patients who completed a sociodemographic questionnaire after registration for their medical appointment. Patients were asked whether responding to the question was difficult or uncomfortable, how they interpreted the term MAIN
findingsPatients did not report discomfort with responding to a question about race and ethnicity in their family doctor's office. Although many patients considered the question straightforward, some patients reported different interpretations of the question. For example, some thought the question about race and ethnicity related to parental origin or ancestry, whereas others considered the question to be about personal place of birth or upbringing. Many patients appreciated being able to select from a variety of specific response options, but this also posed a difficulty for patients who could not easily find an option that reflected their identity. Patients with mixed heritage experienced the most challenges selecting a response.
conclusionPatients attending a primary care clinic were not uncomfortable responding to a question about race and ethnicity. However, patients had different interpretations of what was being asked. Future research should explore perspectives of patients in other primary care settings and test different methods for collecting data about their race and ethnicity.
Indexed as
Identifiers
31413042PMC6693598W2967283103What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.