ArticleBMC research notes2019
Research, recruitment and observational data collection in care homes: lessons from the PACE study.
Article in BMC research notes, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- Trial
- Hospital at Home for older residents with physical deterioration: care home staff experiences.Age and ageing · 2026Article
- IDC-IMPROVE: protocol for a cluster randomised feasibility trial of a care bundle to improve indwelling catheter care (IDC) in residential aged care homes in Australia.Pilot and feasibility studies · 2025Article
- Challenges and facilitators of implementing a participatory nutrition project in residential aged care.Journal of research in nursing : JRN · 2025Article
- Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals.BMC palliative care · 2024Article
- End-of-life care in German and Dutch nursing homes: a cross-sectional study on nursing home staff's perspective in 2022.Archives of public health = Archives belges de sante publique · 2024Article
- Recruitment of older adults from long-term care settings for a longitudinal clinical trial.Research in nursing & health · 2024Article
- Article
- Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study.Palliative medicine · 2023Article
- Feasibility of a placebo-controlled trial of antibiotics for possible urinary tract infection in care homes: a qualitative interview study.BJGP open · 2023Article
- Effective approaches to public involvement in care home research: a systematic review and narrative synthesis.Research involvement and engagement · 2023Article
- ADVANCE: Methodology of a qualitative study.Journal of the American Geriatrics Society · 2021Article
- Higher Prevalence of Dementia but No Change in Total Comfort While Dying among Nursing Home Residents with Dementia between 2010 and 2015: Results from Two Retrospective Epidemiological Studies.International journal of environmental research and public health · 2021Article
- Associations between Length of Stay in Long Term Care Facilities and End of Life Care. Analysis of the PACE Cross-Sectional Study.International journal of environmental research and public health · 2020Article
- Developing a composite outcome measure for frailty prevention trials - rationale, derivation and sample size comparison with other candidate measures.BMC geriatrics · 2020Article
- Palliative Care in the Nursing Home-Shifting Paradigms.JAMA internal medicine · 2020Article
- Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectiveCare homes are a common place of death for older adults, especially those with complex health needs or dementia. Representative, internationally comparable data on care home facilities and their residents is needed to monitor health and wellbeing in this population. Identification and collection of data from care homes can be challenging and often underreported. This paper draws on the experiences of the PACE study, a cross sectional mortality follow back study conducted in six European countries.
resultsMultiple challenges were encountered in creating a sampling framework and contacting, recruiting and retaining care homes in the PACE study. Recruiting a randomly identified, representative cohort from a stratified sampling framework was problematic, as was engaging with care homes to ensure high response rates. Variation in the funding of care homes across the six countries involved in the study may explain the additional challenges encountered in England. Awareness of the challenges encountered in England in implementing an international study in care homes can inform the design and implementation of future studies within care homes. Further discussion is needed to determine the barriers and facilitators to conducting research in care homes, and how this is shaped by the focus of the study.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.