ArticleMidwifery2019
"Nobody knows, or seems to know how rheumatology and breastfeeding works": Women's experiences of breastfeeding whilst managing a long-term limiting condition - A qualitative visual methods study.
Article in Midwifery, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
14 citing papers in PubMed.
- Preferences, factors, and needs involved in decision-making on medication use during lactation among parents and healthcare providers: a Canada-wide cross-sectional survey study.International breastfeeding journal · 2026Article
- Co-Development of an Evidence-Based Breastfeeding Support Intervention, Optimised for Delivery in Healthcare Settings, and Adaptations for Mothers With Long-Term Conditions: The Action for Breastfeeding (A4B) Programme.Maternal & child nutrition · 2026Article
- Breastfeeding determinants in Egyptian mothers with systemic lupus erythematosus or rheumatoid arthritis: a retrospective cohort study.Lupus science & medicine · 2025Article
- Infant feeding experiences of women with systemic lupus erythematosus: A qualitative study.Lupus · 2025Article
- Postpartum periods of visually impaired mothers: A qualitative study.Journal of evaluation in clinical practice · 2025Article
- Sociodemographic and obstetric factors may affect breastfeeding attitudes, self-efficacy, and knowledge in women with rheumatic diseases: a retrospective analysis of self-reported surveys.Rheumatology international · 2024Observational
- "It felt like I had an old fashioned telephone ringing in my breasts": An online survey of UK Autistic birthing parents' experiences of infant feeding.Maternal & child nutrition · 2024Article
- Association of postpartum medication practices with early breastfeeding cessation among mothers with chronic conditions: A prospective cohort study.Acta obstetricia et gynecologica Scandinavica · 2023Article
- Breastfeeding difficulties in the first 6 weeks postpartum among mothers with chronic conditions: a latent class analysis.BMC pregnancy and childbirth · 2023Article
- Mothers' experiences of wellbeing and coping while living with rheumatoid arthritis: a qualitative study.BMC women's health · 2022Article
- Article
- An 'incredible community' or 'disgusting' and 'weird'? Representations of breastmilk sharing in worldwide news media.Maternal & child nutrition · 2021Article
- Exploring the use of health and wellbeing measures during pregnancy and the first year following birth in women living with pre-existing long-term conditions: qualitative interviews with women and healthcare professionals.BMC health services research · 2021Article
- Engaging and supporting women with chronic kidney disease with pre-conception decision-making (including their experiences during COVID 19): A mixed-methods study protocol.Journal of advanced nursing · 2021Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOnly around 1% of babies in the UK are breastfed exclusively until six months of age as recommended by the World Health Organisation. One in ten women who have recently given birth in the UK have a long-term illness and they are at increased risk of stopping breastfeeding early. We considered women with autoimmune rheumatic diseases as an exemplar group of long term illnesses, to explore the barriers and enablers to breastfeeding
aimTo understand the experiences of infant feeding among women with autoimmune rheumatic diseases and to identify potential barriers and enablers.
designQualitative visual timeline-facilitated interviews. PARTICIPANTS AND
setting128 women with autoimmune rheumatic diseases who were considering pregnancy, pregnant, or had young children took part in an online survey as part of the STAR Family Study. Of these, 13 women who had children were purposefully sampled to be interviewed. Interviews took place in person or on the telephone. Timeline-facilitated interviews were used to focus on lived experiences and topics important to the women, including early parenting. We conducted a focused thematic analysis of women's lived experiences of infant feeding.
resultsThree main themes were identified in relation to breastfeeding: lack of information about medication safety, lack of support in decision-making and maintaining breastfeeding, and maternal guilt.
conclusionsWomen with autoimmune rheumatic diseases found it difficult to access the information they needed about medications to make informed decisions about breastfeeding. They often also felt pressurised into breastfeeding and experienced feelings of guilt if they were unable, or did not wish to breastfeed. Tailored interventions are required that adopt a non-judgmental and person-centred approach to support decision-making in regard to infant feeding, providing women with information that can best enable them to make infant feeding choices.
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