Evidence map›Paper›PMID 31402885›Full record

ArticleFrontiers in psychology2019

An International Validation of a Clinical Tool to Assess Carers' Quality of Life in Huntington's Disease.

Aimee Aubeeluck, Edward J N Stupple, Malcolm B Schofield, Alis C Hughes, Lucienne van der Meer, Bernhard Landwehrmeyer, Aileen K Ho

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Frontiers in psychology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.2field-weighted citation impact, top 51% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 6 institutions in 3 countries.

Aimee AubeeluckDepartment of Health Psychology, School of Health Sciences, University of Nottingham, Nottingham, United Kingdom.
Edward J N StuppleDepartment of Psychology, Human Sciences Research Centre, University of Derby, Derby, United Kingdom.
Malcolm B SchofieldHuman Sciences Research Centre, University of Derby, Derby, United Kingdom.
Alis C HughesEuropean Huntington's Disease Network, Quality of Life Working Group, Cardiff, United Kingdom.
Lucienne van der MeerDepartment of Clinical Genetics, Leiden University Medical Centre, Leiden, Netherlands.
Bernhard LandwehrmeyerDepartment of Neurology, Ulm University Medical Center, Ulm, Germany.
Aileen K HoSchool of Psychology and Clinical Language Sciences, University of Reading, Reading, United Kingdom.
University of Derby · GBHuntington's Disease Association · GBLeiden University Medical Center · NLRoyal Berkshire NHS Foundation Trust · GBUniversität Ulm · DEUniversity of Nottingham · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Family carers of individuals living with Huntington's disease (HD) manage a distinct and unique series of difficulties arising from the complex nature of HD. This paper presents the validation of the definitive measure of quality of life (QoL) for this group. The Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) was expanded (

Indexed as

carersfamily caregivingHuntington’s diseasepsychometricsquality of lifequestionnaire

Identifiers

PMID31402885
PMCPMC6676956
OpenAlexW2964309253

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.