ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Reliability and validity of PROMIS® pediatric family relationships short form in children 8-17 years of age with chronic disease.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06630650 (A Single Center Prospective Natural History and Outcome Measure Validation Study of Congenital Myasthenic Syndromes), which is not on this map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Single Center Prospective Natural History and Outcome Measure Validation Study of Congenital Myasthenic Syndromes
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments.BMC psychology · 2021Pooled it
- Quality of life surveys developed or validated in children or youth with special healthcare needs: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Toward Better Conversations: Assessing Caregiver-Child Communication in Pediatric Oncology.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Assessing Adolescent Involvement in Type 1 Diabetes Treatment: A Scoping Review of Person-Reported Outcome Instruments.Acta paediatrica (Oslo, Norway : 1992) · 2025Article
- Depressive and anxiety symptoms during adolescence: The protective roles of adolescent and family assets within ECHO's diverse national population.Mental health science · 2025Article
- Psychosocial outcomes in a diverse sample of youth and their families who initiated continuous glucose monitoring within the first year of type 1 diabetes diagnosis.Diabetes, obesity & metabolism · 2025Article
- Measurement properties of the EQ-5D-Y-3L, PedsQL 4.0, and PROMIS-25 Profile v2.0 in pediatric patients with spinal muscular atrophy.Health and quality of life outcomes · 2024Article
- Social Support, Stress, and Mental Health: Examining the Stress-Buffering Hypothesis in Adolescent Football Athletes.Journal of athletic training · 2024Article
- Association of mental health-related patient reported outcomes with blood pressure in adults and children with primary proteinuric glomerulopathies.Journal of nephrology · 2024Observational
- The incidence of late-detected developmental dysplasia of the hip and its functional outcomes: a 17-year cohort study using selective ultrasound screening.Acta orthopaedica · 2023Article
- Vision-related quality of life compared to generic measures in retinoblastoma survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- The distinct longitudinal impact of pain catastrophizing on pain interference among youth living with sickle cell disease and chronic pain.Journal of behavioral medicine · 2022Article
- Psychometrics of three Swedish physical pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®: pain interference, fatigue, and physical activity.Journal of patient-reported outcomes · 2021Article
- Psychometric evaluation of the PROMIS social function short forms in Chinese patients with breast cancer.Health and quality of life outcomes · 2021Article
- Considerations to Support Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures in Ambulatory Clinics.The Journal of pediatrics · 2021Article
- Effects of homophobic name-calling and verbal sexual harassment on substance use among young adults.Aggressive behavior · 2021Article
- Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness.Health and quality of life outcomes · 2018Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
purposeFamilies play a key role in managing pediatric chronic illness. The PROMIS® pediatric family relationships measure was developed primarily within the general pediatric population. We evaluated the Family Relationships short form in the context of pediatric chronic diseases.
methodsChildren aged 8-17 years with asthma (n = 73), type 1 diabetes (n = 122), or sickle cell disease (n = 80) completed the Family Relationships 8a short form and the PROMIS Pediatric Profile-25's six domains representing physical, mental, and social health. Parents (N = 275) of these children completed the parent versions of the same measures. We evaluated reliability of the Family Relationships measure using Cronbach's alpha and IRT-based marginal reliability, and the standard error of measurement (SEM). Convergent/discriminant validity were assessed from correlations between the Family Relationships domain and the PROMIS-25 domains.
resultsSEM increased for scores above the normative mean of 50. Cronbach's alpha and IRT-estimated marginal reliabilities exceeded 0.80 for children and parents across diseases, except in asthma, where marginal reliability was 0.75 for parents. Scores displayed small to large correlations in the expected directions with social and mental health domains. The largest correlations occurred with parents' proxy reports of children's depressive symptoms in sickle cell disease and asthma, r = - 0.60 (95% CI - 0.74, - 0.48) and r = - 0.58 (95% CI - 0.68, - 0.48) respectively.
conclusionsThe Family Relationships 8-item short form demonstrated adequate reliability and convergent/discriminant validity for use in pediatric chronic conditions, though scores above the mean displayed greater uncertainty. Evidence of the measure's reliability and validity in multiple contexts furthers the case for its use.
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