Evidence map›Paper›PMID 31399100›Full record

ArticleBMC medical ethics2019

What Egyptians think. Knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.

Ahmed S Abdelhafiz, Eman A Sultan, Hany H Ziady, Ebtesam Ahmed, Walaa A Khairy, Douaa M Sayed, Rana Zaki, Merhan A Fouda, Rania M Labib

Abstract read
In one paragraph

Article in BMC medical ethics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Ahmed S AbdelhafizDepartment of Clinical pathology, National Cancer Institute, Cairo University, Kasr Al-Aini Street, Fom Elkhalig square, Cairo, 11796, Egypt. ahmed.samir@nci.cu.edu.eg.ORCID 0000-0003-4564-8073
Eman A SultanDepartment of Community Medicine, Faculty of Medicine, Alexandria University, Alexandria, Egypt.
Hany H ZiadyDepartment of Community Medicine, Faculty of Medicine, Alexandria University, Alexandria, Egypt.
Ebtesam AhmedCollege of Pharmacy and Health Sciences, St. John's University, New York, NY, USA.
Walaa A KhairyDepartment of Community Medicine, Faculty of Medicine, Cairo University, Cairo, Egypt.
Douaa M SayedDepartment of Clinical pathology, South Egypt Cancer Institute, Assiut University, Assiut, Egypt.
Rana ZakiFaculty of Medicine, Cairo University, Cairo, Egypt.
Merhan A FoudaDepartment of Clinical pathology, National Cancer Institute, Cairo University, Kasr Al-Aini Street, Fom Elkhalig square, Cairo, 11796, Egypt.
Rania M LabibResearch Department, Children's Cancer Hospital Egypt, 57357, Cairo, Egypt.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundBiobanking is a relatively new concept in Egypt. Building a good relationship with different stakeholders is essential for the social sustainability of biobanks. To establish this relationship, it is necessary to assess the attitude of different groups towards this concept. The objective of this work is to assess the knowledge, attitude, and opinions of Egyptian patients towards biobanking issues.

methodsWe designed a structured survey to be administered to patients coming to the outpatient clinics in 3 university hospitals in Egypt. The survey included questions estimating the level of knowledge about the term "Biobank", together with questions about the attitudes and opinions about related issues.

resultsTwo hundred and fifty-nine patients participated in the survey. Eighty-one percent of participants reported that they never heard about the term before. About 85% expressed that they would be willing to donate their samples for research and about 87% thought that sample donation did not contradict their religious beliefs. Fifty eight percent were willing to participate in a genetic research project, 27.8% supported sharing their sample with pharmaceutical companies, and 32.4% agreed to share their samples with institutions abroad.

conclusionAlthough there is limited knowledge about biobanking among Egyptian patients, many had a positive attitude towards sample donation and didn't show religious concerns against it. However, they showed concerns regarding participation in genetic research and with sharing their samples across borders or with pharmaceutical companies. Public education about biobanking is possible, taking into consideration the specific cultural and legal framework in Egypt.

Indexed as

Biological Specimen BanksHealth Knowledge, Attitudes, PracticeAdolescentAdultAgedAged, 80 and overAttitude to HealthConfidentialityEgyptFemaleHumansMaleMiddle AgedSurveys and QuestionnairesTissue DonorsYoung AdultAttitudeBiobankingEgyptKnowledgeOpinionsPatients

Identifiers

PMID31399100
PMCPMC6689171

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.