Evidence map›Paper›PMID 31395393›Full record

ArticleNursing outlook

Advocacy and actions to address disparities in access to genomic health care: A report on a National Academies workshop.

Janet K Williams, Vence L Bonham, Catherine Wicklund, Bernice Coleman, Jacquelyn Y Taylor, Ann K Cashion

Abstract read
In one paragraph

Article in Nursing outlook. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
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  5. Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Janet K WilliamsCollege of Nursing, The University of Iowa, Iowa City, IA; American Academy of Nursing, Washington, DC. Electronic address: janet-williams@uiowa.edu.
Vence L BonhamNational Human Genome Research Institute, National Institutes of Health, Bethesda, MD.
Catherine WicklundNorthwestern University, Chicago, IL.
Bernice ColemanAmerican Academy of Nursing, Washington, DC; Cedars-Sinai, Los Angeles, CA.
Jacquelyn Y TaylorAmerican Academy of Nursing, Washington, DC; New York University Rory Meyers College of Nursing, New York, NY.
Ann K CashionAmerican Academy of Nursing, Washington, DC; National Institute of Nursing Research, National Institutes of Health, Bethesda, MD.

Funding

Biomarkers to Predict Patient Outcomes and Guide TherapiesZIANR000030 · NINR · NATIONAL INSTITUTE OF NURSING RESEARCH · PI CASHION, ANN · 2014 to 2019
$10.0M
Intergenerational Impact of Genetic and Psychological Factors on Blood PressureR01NR013520 · NINR · YALE UNIVERSITY · PI TAYLOR, JACQUELYN Y · 2014 to 2019
$3.9M
NINR NIH HHS R01 NR013520
6 · The paper itself

Abstract

backgroundIn the United States, access to genomic risk assessment, testing, and follow up care is most easily obtained by those who have sufficient financial, educational, and social resources. Multiple barriers limit the ability of populations without those resources to benefit from health care that integrates genomics in assessment of disease risk, diagnosis, and targeted treatment. PURPOSE: To summarize barriers and potential actions to reduce genomic health care disparities.

methodSummarize authors' views on discussions at a workshop hosted by the National Academy of Medicine. DISCUSSION: Barriers include access to health care providers that utilize genomics, genetic literacy of providers and patients, and absence of evidence of gene variants importance in ancestrally diverse underserved populations.

conclusionEngagement between underserved communities, health care providers, and policy makers is an essential component to raise awareness and seek solutions to barriers in access to genomic health care for all populations.

Indexed as

Health LiteracyIntersectoral CollaborationAdultAgedAged, 80 and overCongresses as TopicDelivery of Health CareFemaleGenomicsHealthcare DisparitiesHealth Services AccessibilityHumansMaleMedically Underserved AreaMiddle AgedNursing CareGenomicHealth care disparitiesNursingUnderserved

Identifiers

PMID31395393
PMCPMC9450511

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.