ArticleNeuro-oncology practice2019
I-CoPE: A pilot study of structured supportive care delivery to people with newly diagnosed high-grade glioma and their carers.
Article in Neuro-oncology practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07617168 (The Effect of the Education for Brain Tumor Patients and Their Caregivers on the Quality of Life and Care Burden), which is not on this map. Cited by 21 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Effect of the Education for Brain Tumor Patients and Their Caregivers on the Quality of Life and Care Burden
Who cites it
21 citing papers in PubMed, 4 syntheses or guidelines pooled it, 27 citations in OpenAlex.
- Palliative care and end-of-life care in adults with malignant brain tumors.Neuro-oncology · 2023Pooled it
- Benefits of supportive strategies for carers of people with high-grade glioma: a systematic review : Strategies for addressing the needs of high-grade glioma carers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Reforming support systems of newly diagnosed brain cancer patients: a systematic review.Journal of neuro-oncology · 2022Pooled it
- Pooled it
- Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results.Journal of neuro-oncology · 2023Trial
- Patient navigation in neuro-oncology: A scoping review of programs supporting patients with CNS tumors.Equity neuroscience · 2026Article
- Care-Related Quality of Life of Caregivers for Patients With Low Vision and Blindness: A Cross-Sectional Study.Journal of ophthalmology · 2026Article
- Identifying components of care coordination for primary brain tumor: A scoping review.Neuro-oncology practice · 2025Review
- Interventions to Support Transitions in Care Among Patients With Cancer: A Scoping Review.Cancer medicine · 2025Article
- Glioblastoma Patient and Caregiver Perspectives of Treatment Side-Effects and Information Provision.Journal of patient experience · 2025Article
- Correlation Between the Quality of Life of Stroke Caregivers and the Readiness of Patients and Caregivers for Hospital Discharge.Patient preference and adherence · 2025Article
- Clinician perspectives on integrating neuro-oncology and palliative care for patients with high-grade glioma.Neuro-oncology practice · 2024Article
- Simulation-based caregiving skills training for family members of high-grade glioma patients.Neuro-oncology practice · 2024Article
- What do carers of people with high-grade glioma perceive could improve their preparedness to care, and what additional support do they require?Neuro-oncology practice · 2024Article
- Palliative care referral across the disease trajectory in high-grade glioma.Journal of neuro-oncology · 2023Article
- Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities.Frontiers in public health · 2023Article
- Scoping the psychological support practices of Australian health professionals working with people with primary brain tumor and their families.Psycho-oncology · 2022Article
- Effect of Comprehensive Nursing Based on Cognitive Behavior on Psychological Function of Glioma Patients.Neuropsychiatric disease and treatment · 2021Article
- Palliative Care in High-Grade Glioma: A Review.Brain sciences · 2020Review
- Scope of Practice, Role Legitimacy, and Role Potential for Cancer Care Coordinators.Asia-Pacific journal of oncology nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is limited evidence to guide best approaches to supportive care delivery to patients with high-grade glioma. I-CoPE (
methodsI-CoPE was delivered at the identified transition times (at diagnosis, following the diagnostic hospitalization, following radiotherapy), with associated data collection (enrollment, 2 weeks, 12 weeks). Outcomes of interest included: acceptability/feasibility (primary); quality of life; needs for support; disease-related information needs; and carer preparedness to care (secondary). Descriptive statistics were used to assess acceptability outcomes, while patient and carer outcomes were assessed using repeated measures ANOVA.
resultsThirty-two patients (53% male, mean age 60) and 31 carers (42% male) participated. I-CoPE was highly acceptable: 86% of eligible patients enrolled, and of these 88% completed the study. Following I-CoPE patients and carers reported fewer information needs (
conclusionA model of supportive care delivered based upon illness transitions is feasible, acceptable, and suggests preliminary efficacy in some areas. Formal randomized studies are now required.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.