Evidence map›Paper›PMID 31384304›Full record

ArticlePublic health ethics2019

What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening.

Stuart G Nicholls, Holly Etchegary, Laure Tessier, Charlene Simmonds, Beth K Potter, Jamie C Brehaut, Daryl Pullman, Robin Z Hayeems, Sari Zelenietz, Monica Lamoureux and 4 more

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Public health ethics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact, top 92% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 5 institutions in 2 countries.

Stuart G NichollsSchool of Epidemiology and Public Health, University of Ottawa and Ottawa Hospital Research Institute (OHRI).ORCID 0000-0003-0485-9069
Holly EtchegaryClinical Epidemiology Unit, Faculty of Medicine, Memorial University, St John's, Newfoundland and Labrador.
Laure TessierNewborn Screening Ontario, Children's Hospital of Eastern Ontario.
Charlene SimmondsHealth Research Unit, Faculty of Medicine, Memorial University, St John's, Newfoundland and Labrador.
Beth K PotterSchool of Epidemiology and Public Health, University of Ottawa.
Jamie C BrehautSchool of Epidemiology and Public Health, University of Ottawa and Ottawa Hospital Research Institute (OHRI).
Daryl PullmanCommunity Health and Humanities, Faculty of Medicine, Memorial University, St John's, Newfoundland and Labrador.
Robin Z HayeemsProgram in Child Health Evaluative Sciences, The Hospital for Sick Children and The Institute of Health Policy, Management and Evaluation, University of Toronto.
Sari ZelenietzNewborn Screening Ontario, Children's Hospital of Eastern Ontario.
Monica LamoureuxNewborn Screening Ontario, Children's Hospital of Eastern Ontario.
Jennifer MilburnNewborn Screening Ontario, Children's Hospital of Eastern Ontario.
Lesley TurnerProvincial Medical Genetics Program, Eastern Health, St John's, Newfoundland and Labrador.
Pranesh ChakrabortyNewborn Screening Ontario, Children's Hospital of Eastern Ontario and Department of Pediatrics, Faculty of Medicine, University of Ottawa.
Brenda J WilsonDivision of Community Health and Humanities, Faculty of Medicine, Memorial University of Newfoundland.
Children's Hospital of Eastern Ontario · CAMemorial University of Newfoundland · CAUniversity of Ottawa · CAEastern Health · AUUniversity of Toronto · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Newborn bloodspot screening programs are some of the longest running population screening programs internationally. Debate continues regarding the need for parents to give consent to having their child screened. Little attention has been paid to how meanings of consent-related terminology vary among stakeholders and the implications of this for practice. We undertook semi-structured interviews with parents (

Identifiers

PMID31384304
PMCPMC6655345
OpenAlexW2944267968

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.