ArticleBMJ open2019
Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 5 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
46 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Yoga for fatigue in people with cancer.The Cochrane database of systematic reviews · 2025Pooled it
- Cardiovascular training for fatigue in people with cancer.The Cochrane database of systematic reviews · 2025Pooled it
- Resistance training for fatigue in people with cancer.The Cochrane database of systematic reviews · 2024Pooled it
- Cardiovascular training versus resistance training for fatigue in people with cancer.The Cochrane database of systematic reviews · 2024Pooled it
- Adapting a codesign process with young people to prioritize outcomes for a systematic review of interventions to prevent self-harm and suicide.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- What Matters Most: The Top 10 Child and Adolescent Cancer Research Priorities in Australia.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Mixed-Methods Evaluation of the Delivery of Cancer Care to Teenagers and Young Adults in England and Wales: BRIGHTLIGHT_2021.Current oncology (Toronto, Ont.) · 2026Article
- Top 10 research priorities for adolescent and young adult cancer in Canada: a James Lind Alliance priority setting partnership.BMJ open · 2026Article
- A mixed-methods study of how cancer-related fatigue affects occupational participation and engagement, and is managed in daily life.The British journal of occupational therapy · 2026Article
- Advancing child health through applied qualitative research.EClinicalMedicine · 2026Review
- Article
- Priority setting for supportive care research in children and young people with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People.Cancers · 2025Article
- Article
- Non-pharmacological interventions to support return to education and work for adolescent and young adults (AYAs) following a cancer diagnosis: a scoping review protocol.HRB open research · 2025Article
- Stakeholder Consultation to Establish Research Priorities for Specialist Dementia Nursing in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The academic impact of paediatric research agendas: a descriptive analysis.Research involvement and engagement · 2024Article
- Article
- A Prospective Observational Cohort Study for Newly Diagnosed Osteosarcoma Patients in the UK: ICONIC Study Initial Results.Cancers · 2024Article
- The Emotional Impact of a Cancer Diagnosis: A Qualitative Study of Adolescent and Young Adult Experience.Cancers · 2024Article
Corrections and comments
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Authors and funding
18 authors.
Funding
Abstract
objectivesTo conduct a UK-wide survey of young people who have experienced cancer, carers and professionals, to identify and prioritise research questions to inform decisions of research funders and support the case for research with this unique cancer population.
designJames Lind Alliance Priority Setting Partnership.
settingUK health service and community.
methodsA steering group oversaw the initiative and partner organisations were recruited. Unanswered questions were collected in an online survey. Evidence searching verified uncertainties. An interim survey was used to rank questions prior to a final prioritisation workshop.
participantsYoung people aged 13-24 years with a current or previous cancer diagnosis, their families, friends, partners and professionals who work with this population.
resultsTwo hundred and ninety-two respondents submitted 855 potential questions. Following a refining process and removal of 'out of scope' questions, 208 unique questions remained. Systematic evidence checking identified seven answered questions and 16 were the subject of ongoing studies. The interim survey was completed by 174 participants. The top 30 questions were prioritised at a workshop attended by 25 young people, parents and multidisciplinary professionals. The top three priorities are: (1) What psychological support package improves psychological well-being, social functioning and mental health during and after treatment? (2) What interventions, including self-care, can reduce or reverse adverse short-term and long-term effects of cancer treatment? (3) What are the best strategies to improve access to clinical trials? The remaining questions reflect the complete cancer pathway: new therapies, life after cancer, support, education/employment, relapse and end-of-life care.
conclusionsWe have identified shared research priorities for young people with cancer using a rigorous, person-centred approach involving stakeholders typically not involved in setting the research agenda. The breadth of priorities suggest future research should focus on holistic and psychosocial care delivery as well as traditional drug/biology research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.