Evidence map›Paper›PMID 31379268›Full record

ArticleAJOB empirical bioethics

Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.

Daima Bukini, Jantina deVries, Marsha Treadwell, Kofi Anie, Jemima Dennis-Antwi, Karene Kengne Kamga, Sheryl McCurdy, Kwaku Ohene-Frempong, Julie Makani, Ambroise Wonkam

Abstract read
In one paragraph

Article in AJOB empirical bioethics. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Review
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  5. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Daima Bukinia Sickle Cell Disease Programme, Muhimbili University of Health and Allied Sciences , Dar es Salaam , Tanzania.ORCID 0000-0002-1376-4654
Jantina deVriesb Department of Medicine, Faculty of Health Sciences, University of Cape Town , Cape Town , South Africa.
Marsha Treadwellc Department of Hematology/Oncology, UCSF Benioff Children's Hospital Oakland , Oakland , California , USA.ORCID 0000-0003-0521-1846
Kofi Anied Haematology and Sickle Cell Centre, London North West Healthcare NHS Trust & Imperial College London , London , UK.
Jemima Dennis-Antwie Ghana College of Nurses and Midwives , Accra , Ghana.
Karene Kengne Kamgaf Faculty of Medicine and Biomedical Sciences, University of Yaoundé I , Yaoundé , Cameroon.
Sheryl McCurdyg Department of Health Promotion and Behavioral Sciences, University of Texas School of Public Health , Houston , Texas , USA.ORCID 0000-0003-0526-1608
Kwaku Ohene-Frempongh Sickle Cell Foundation of Ghana , Accra , Ghana.
Julie Makania Sickle Cell Disease Programme, Muhimbili University of Health and Allied Sciences , Dar es Salaam , Tanzania.
Ambroise Wonkami Division of Human Genetics, Department of Pathology, University of Cape Town , Cape Town , South Africa.

Funding

Sickle Africa Data Coordinating CenterU24HL135600 · NHLBI · UNIVERSITY OF CAPE TOWN · PI MULDER, NICOLA, WONKAM, AMBROISE · 2017 to 2025
$8.6M
The Sickle Pan-African Research Consortium (SPARCO)U24HL135881 · NHLBI · MUHIMBILI UNIVERSITY/ ALLIED HLTH SCIS · PI MAKANI, JULIE · 2017 to 2025
$5.3M
Return of a Fragile X Syndrome genetic result: exploring the feedback of individual genetic findings and their relation to traditional knowledge in a village in Cameroon.U54HG009790 · NHGRI · UNIVERSITY OF CAPE TOWN · PI WONKAM, AMBROISE · 2017 to 2021
$2.5M
Exploring Perspectives on Genomics and Sickle Cell Public Health InterventionsU01HG007459 · NHGRI · UNIVERSITY OF CAPE TOWN · PI WONKAM, AMBROISE · 2013 to 2016
$622k
NHGRI NIH HHS U01 HG007459NHGRI NIH HHS U54 HG009790NHLBI NIH HHS U24 HL135600NHLBI NIH HHS U24 HL135881
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Decision Making, SharedInformed ConsentAnemia, Sickle CellBiomedical ResearchCameroonChildCross-Sectional StudiesFocus GroupsGhanaHumansInterviews as TopicParentsProxyTanzaniaAfricachildrenGenomics researchresearch participationshared decision making

Identifiers

PMID31379268
PMCPMC7255821

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.