ArticleHealth expectations : an international journal of public participation in health care and health policy2019
Understanding the motivations of patients: A co-designed project to understand the factors behind patient engagement.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
40 citing papers in PubMed, 1 synthesis or guideline pooled it, 72 citations in OpenAlex.
- Patient and Public Involvement Work With Parents of Children With Life-Limiting Conditions and Bereaved Parents: A Rapid Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
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- Creating shared vision in patient partnered research: a case example of patient engagement from the PAVE project (producing an arthritis value framework with economic evidence: paving the way for rare childhood disease).Research involvement and engagement · 2026Article
- User-Centered Design Approach to Dynamic Clinical Decision Support in Primary Prevention of Cardiovascular Disease.Healthcare (Basel, Switzerland) · 2026Article
- Barriers and Facilitators to the Use of Novel Injectable Lipid-Lowering Therapies in Patients with Dyslipidemia or Cardiovascular Disease: A Scoping Review.Medicina (Kaunas, Lithuania) · 2026Article
- Prospective Preference Assessment of Potential Participants in the Perioperative Rectal Methadone in Spine Surgery (PROMISE) Trial.Canadian journal of pain = Revue canadienne de la douleur · 2026Article
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- Vibrotactile Stimulation in Lower Extremity Amputation Patients Using a Noninvasive Vibration Device: A Pilot Study.Plastic and reconstructive surgery. Global open · 2025Article
- Supporting the continuous development and use of a patient partnership framework in European rare disease networks (ERNs): a scoping review of frameworks in the scientific literature.Journal of community genetics · 2025Review
- Bridging the Gap: Understanding Patient and Clinician Preferences When Designing Preoperative Education Programs.Journal of evaluation in clinical practice · 2025Article
- Establishing patient partners' roles on research teams: a scoping review.Research involvement and engagement · 2024Article
- Am I attached? A patient-partnered approach to creating infographics about attachment to primary care in Ontario, Canada.Research involvement and engagement · 2024Article
- Motivation for patient engagement in patient safety: a multi-perspective, explorative survey.BMC health services research · 2024Article
- Exploring barriers and solutions to consumer involvement in health service research using a nominal group technique.Research involvement and engagement · 2024Article
- Experiences of people with Long Covid with a digital physiotherapy intervention: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process.Research involvement and engagement · 2024Article
- Patient motivation: A concept analysis.Belitung nursing journal · 2024Article
- Patient Partner Perspectives: The Experience of Participating in a Co-Designed Virtual Reality Project.Journal of patient experience · 2024Article
- Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiences.Research involvement and engagement · 2023Article
Corrections and comments
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Authors and funding
9 authors at 3 institutions in 2 countries.
Funding
Abstract
backgroundLarge-scale transformation depends on effective engagement of diverse stakeholders. With the evolution of the role of the 'patient partner' in health-care decision making, understanding the motivations of these individuals is essential to the success of engagement initiatives. This study reports on motivational factors associated with patient engagement in health care.
methodsPatient co-investigators and a researcher co-designed and conducted this study. A survey was administered to patients and family members. Key informant interviews and previous research informed the development of the survey tool. The survey data were analysed using exploratory factor analysis to identify the underlying dimensions in the data. Cronbach's alpha was used to determine reliability.
resultsA total of 1449 individuals participated in the survey. Of these, 543 completed and 427 partially completed the survey (67% complete rate). The mean age of the respondents was 54 years. The majority of participants were female, well-educated, retired, married and lived in an urban centre. Seven motivational factors explained 65% of the total variance. Analysis of internal consistency revealed acceptable reliability for all items. The seven motivations were as follows: Self-fulfillment, Improving Healthcare, Compensation, Influence, Learning New Things, Conditional and Perks.
conclusionThe results of this research describe a sample of patient and family members currently engaged with health systems. We identified seven motivational factors underlying their engagement. A deeper knowledge of volunteer motivations will not only create meaningful engagement opportunities for patients, but also enable health organizations to gain from the experience of these individuals, thereby enhancing quality and sustainability of patient engagement programmes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.