ArticleHealth policy and planning2019
Access to healthcare for children with Congenital Zika Syndrome in Brazil: perspectives of mothers and health professionals.
Article in Health policy and planning, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it, 66 citations in OpenAlex.
- Congenital Zika Syndrome-Assessing the Need for a Family Support Programme in Brazil.International journal of environmental research and public health · 2020Pooled it
- Early and Long-Term Adverse Outcomes of In Utero Zika Exposure.Pediatrics · 2025Article
- A specific role of village doctors in reducing disparities: a quantile regression analysis of end-of-life medical care.BMC palliative care · 2025Article
- [Validation of the logical model of comprehensive care for children with congenital Zika syndrome].Cadernos de saude publica · 2025Article
- Congenital Zika syndrome: geographical access to the health care network.Revista de saude publica · 2025Article
- The lingering crisis: gaps in long-term care for children with congenital Zika syndrome and their families in Brazil.Revista do Instituto de Medicina Tropical de Sao Paulo · 2025Article
- High-Risk Areas for Congenital Zika Syndrome in Rio de Janeiro: Spatial Cluster Detection.Tropical medicine and infectious disease · 2024Article
- Inclusion of disability in primary healthcare facilities and socioeconomic inequity in Brazil.Revista de saude publica · 2024Article
- Access to primary healthcare services among adults with disabilities in Brazil.Revista de saude publica · 2024Article
- The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID-19 pandemic.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Democratizing Public Health: Participatory Policymaking Institutions, Mosquito Control, and Zika in the Americas.Tropical medicine and infectious disease · 2023Article
- My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- The National Health Policy for people with disabilities in Brazil: an analysis of the content, context and the performance of social actors.Health policy and planning · 2022Article
- The Salvador Primary Care Longitudinal Study of Child Development (CohortDICa) Following the Zika Epidemic: Study Protocol.International journal of environmental research and public health · 2022Article
- Article
- Assessment of the feasibility of Juntos: A support programme for families of children affected by Congenital Zika Syndrome.Wellcome open research · 2022Article
- Barriers to the access of people with disabilities to health services: a scoping review.Revista de saude publica · 2022Article
- The legacy of ZikaPLAN: a transnational research consortium addressing Zika.Global health action · 2021Review
- Theoretical care model for children with congenital Zika virus syndrome in the family context.Revista latino-americana de enfermagem · 2021Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 4 institutions in 2 countries.
Funding
Abstract
The Congenital Zika Syndrome (CZS) epidemic took place in Brazil between 2015 and 2017 and led to the emergence of at least 3194 children born with CZS. We explored access to healthcare services and activities in the Unified Health Service (Sistema Único de Saúde: SUS) from the perspective of mothers of children with CZS and professionals in the Public Healthcare Network. We carried out a qualitative, exploratory study, using semi-structured interviews, in two Brazilian states-Pernambuco, which was the epicentre of the epidemic in Brazil, and Rio de Janeiro, where the epidemic was less intense. The mothers and health professionals reported that healthcare provision was insufficient and fragmented and there were problems with follow-up care. There was a lack of co-ordination and an absence of communication between the various specialized services and between different levels of the health system. We also noted a public-private mixture in access to healthcare services, resulting from a segmented system and related to inequality of access. High reported household expenditure is an expression of the phenomenon of underfunding of the public system. The challenges that mothers and health professionals reported exposes contradictions in the health system which, although universal, does not guarantee equitable and comprehensive care. Other gaps were revealed through the outbreak. The epidemic provided visibility regarding difficulties of access for other children with disabilities determined by other causes. It also made explicit the gender inequalities that had an impact on the lives of mothers and other female caregivers, as well as an absence of the provision of care for these groups. In the face of an epidemic, the Brazilian State reproduced old fashioned forms of action-activities related to the transmitting mosquito and to prevention with an emphasis on the individual and no action related to social determinants.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.