Evidence map›Paper›PMID 31368624›Full record

ArticleHealth & social care in the community2019

On the path together: Experiences of partners of people with multiple sclerosis of the impact of lifestyle modification on their relationship.

Sandra L Neate, Keryn L Taylor, George A Jelinek, Alysha M De Livera, Steve Simpson, William Bevens, Tracey J Weiland

Abstract read
In one paragraph

Article in Health & social care in the community, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Lifestyle changes and patient-reported outcomes over five years in a sample of people with multiple sclerosis after a single multimodal intensive lifestyle education workshop.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025
    Article
  2. Article
  3. Article
  4. Coping Strategies Furthering Post-Traumatic Growth in Multiple Sclerosis: A Longitudinal Study.International journal of environmental research and public health · 2022
    Article
  5. Article
  6. Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis.Health expectations : an international journal of public participation in health care and health policy · 2022
    Review
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Sandra L NeateNeuroepidemiolgy Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Vic., Australia.ORCID 0000-0002-0761-9848
Keryn L TaylorNeuroepidemiolgy Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Vic., Australia.
George A JelinekNeuroepidemiolgy Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Vic., Australia.ORCID 0000-0001-6157-0910
Alysha M De LiveraNeuroepidemiolgy Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Vic., Australia.
Steve SimpsonNeuroepidemiolgy Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Vic., Australia.ORCID 0000-0001-6521-3056
William BevensNeuroepidemiolgy Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Vic., Australia.
Tracey J WeilandNeuroepidemiolgy Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Vic., Australia.

Funding

Linda and Tony Bloom and Wal Pisciotta
6 · The paper itself

Abstract

Multiple sclerosis (MS) has a major impact on the relationship of couples living with the illness. Although some positives of dealing with MS as a couple have been identified, MS has been associated with higher rates of relationship breakdown and worse Quality of Life (QOL) for both people in the relationship, especially if the person with MS experiences a decline in mental or physical health or develops disability. Modification of lifestyle-related risk factors has been associated with improved outcomes for people with MS, including physical and mental health-related QOL, and these improved outcomes may lead to improved experiences for their partners. We aimed to explore the perspectives and experiences of the partners of people with MS, when the people with MS had undertaken an intensive residential workshop regarding healthy lifestyle, to understand the impact of MS and lifestyle modification on these partners' experiences of their relationship. Within the framework of Heidegger's interpretive phenomenology, semi-structured interviews were thematically analysed. Participants were in a spousal relationship with people with MS who had attended an intensive residential workshop regarding modification of lifestyle-related risk factors between 2002 and 2016. Participants lived in Australia, New Zealand, the United Kingdom and Europe. Three major themes were identified relating to the couple's relationships: providing support, remaining connected and togetherness. Aspects of these themes, not commonly previously reported, included the personal and relationship benefits experienced from providing support with lifestyle modification, improved communication, and the resultant greater sense of closeness. These experiences of partners of people with MS improve our understanding of both the complexities of living with MS and adopting lifestyle modification, and suggest some potential benefits to relationships.

Indexed as

Life StyleActivities of Daily LivingAdaptation, PsychologicalAdultAustraliaEuropeFemaleHome NursingHumansMaleMiddle AgedMultiple SclerosisNew ZealandQuality of LifeSpousesUnited Kingdomlifestyle modificationmultiple sclerosispartnersqualitativerelationships

Identifiers

PMID31368624
PMCPMC6851851

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.