Evidence map›Paper›PMID 31368210›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2019

Assessing decision regret in caregivers of deceased German people with cancer-A psychometric validation of the Decision Regret Scale for Caregivers.

Markus W Haun, Alexander Schakowski, Ariane Preibsch, Hans-Christoph Friederich, Mechthild Hartmann

Open access · goldAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
5.8field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 27 citations in OpenAlex.

  1. Decision regret in patients with rectal cancer undergoing multimodal therapy.Clinical and translational radiation oncology · 2026
    Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Observational
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. The use of theFrontiers in psychology · 2022
    Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Assessing decision regret in caregivers of deceased German people with cancer-A psychometric validation of the Decision Regret Scale for Caregivers.Health expectations : an international journal of public participation in health care and health policy · 2019
    Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Markus W HaunDepartment of General Internal Medicine and Psychosomatics, Heidelberg University, Heidelberg, Germany.ORCID 0000-0003-1851-3747
Alexander SchakowskiDepartment of General Internal Medicine and Psychosomatics, Heidelberg University, Heidelberg, Germany.
Ariane PreibschDepartment of General Internal Medicine and Psychosomatics, Heidelberg University, Heidelberg, Germany.
Hans-Christoph FriederichDepartment of General Internal Medicine and Psychosomatics, Heidelberg University, Heidelberg, Germany.
Mechthild HartmannDepartment of General Internal Medicine and Psychosomatics, Heidelberg University, Heidelberg, Germany.
Heidelberg University · DE

Funding

Deutsche Forschungsgemeinschaft HA 7536/1-1
6 · The paper itself

Abstract

backgroundDecisional regret during or after medical treatments is linked to significant distress. Regret affects not only patients but also caregivers having an active or passive role during decision making. The Decision Regret Scale (DRS) is a self-report measure for regret in patients after treatment decisions. However, practical and psychometrically robust instruments assessing regret in caregivers are lacking.

objectiveTo develop and validate a caregiver version of the DRS (Decision Regret Scale for Caregivers [DRS-C]).

designPsychometric validation based on a web survey. SETTING AND

participants361 caregivers of deceased German people/patients with cancer. MAIN VARIABLES STUDIED: Besides structural validity and test-retest reliability, we evaluated measurement invariance accounting for gender, age and closeness of relationship, and tested hypotheses on convergent/discriminant validity.

resultsForty-five per cent of all caregivers demonstrated decision regret. Confirmatory factor analyses strongly supported the unidimensional structure of the DRS-C and pointed to strict invariance. The DRS-C demonstrated very good internal consistency (α = 0.83, 95% CI [0.81, 0.86]) and test-retest reliability (ICC [A,1] = 0.73, 95% CI [0.59, 0.83]) along with sound convergent/discriminant validity. Concerning responsiveness, DRS-C scores remained stable over a 12-week period in 83.3% of all caregivers. Receiver operating characteristic analysis yielded a cut point of 43 for the identification of significant decision regret (AUC = 0.62, 95% CI [0.56, 0.68]). DISCUSSION AND

conclusionsThe lack of a gold standard instrument prevented us from examining the criterion validity and determining a minimally important difference. Nevertheless, the DRS-C provides valid and reliable information regarding caregiver regret following medical decisions. Above all, it captures a crucial aspect of the treatment experience in caregivers.

Indexed as

Decision MakingEmotionsCaregiversCross-Sectional StudiesFemaleGermanyHumansMaleNeoplasmsPsychometricsReproducibility of ResultsSurveys and Questionnairesaggressiveness of carecancercaregiverconfirmatory factor analysisdecision regretmeasurement invariance

Identifiers

PMID31368210
PMCPMC6803409
OpenAlexW2964408209

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.