ArticleJournal of general internal medicine2019
Understanding Long-Term Cancer Survivors' Preferences for Ongoing Medical Care.
Article in Journal of general internal medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 35 citations in OpenAlex.
- What is the prevalence of fear of cancer recurrence in cancer survivors and patients? A systematic review and individual participant data meta-analysis.Psycho-oncology · 2022Pooled it
- Health information technology to support cancer survivorship care planning: A systematic review.Journal of the American Medical Informatics Association : JAMIA · 2021Pooled it
- Using co-design to develop actionable strategies to identify and follow-up on breast cancer survivors in primary care.BMC health services research · 2026Trial
- Baseline characteristics of survivors, primary care clinicians, and oncologists in a randomized trial of a shared care, self-management intervention for cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Trial
- Primary care visits are higher amongst adults who report sexual dysfunction concerns after cancer treatment.Scientific reports · 2026Article
- Identifying Patients with Breast Cancer History Using Epic Electronic Health Record.Journal of the American Board of Family Medicine : JABFM · 2026Article
- Mental Comorbidity and Psychosocial Care in Patients with Cancer.Deutsches Arzteblatt international · 2025Article
- Spanish Society of Medical Oncology recommendations for comprehensive assessment and care of cancer survivors' needs.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2025Review
- Health Care Contact Days Among Older Cancer Survivors.JCO oncology practice · 2024Article
- Colorectal cancer screening utilization among breast, cervical, prostate, skin, and lung cancer survivors.Journal of cancer survivorship : research and practice · 2024Article
- Article
- Myths and Presumptions About Cancer Survivorship.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024Article
- Development of a supportive care needs eHealth application for patients with cervical cancer undergoing surgery: a feasibility study.BMC health services research · 2024Review
- Research-practice partnership: supporting rural cancer survivors in Montana.Cancer causes & control : CCC · 2023Article
- Patient preferences and comfort for cancer survivorship models of care: results of an online survey.Journal of cancer survivorship : research and practice · 2023Article
- Quality of life patient/cancer survivor version in Chinese cancer survivors: A validation study.Asia-Pacific journal of oncology nursing · 2023Article
- Identifying the Needs of Primary Care Providers Caring for Breast and Colon Cancer Survivors in the Safety-Net: a Qualitative Study.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Specialist versus Primary Care Prostate Cancer Follow-Up: A Process Evaluation of a Randomized Controlled Trial.Cancers · 2022Article
- Anticipating mental health needs after chemotherapy in early-stage breast cancer using patient-reported symptom screening.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Preferences of gastric cancer survivors for follow-up care-a multicenter discrete choice experiment study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDue to risk for treatment-related late effects and concerns about cancer recurrence, long-term cancer survivors have unique medical needs. Survivors' preferences for care may influence adherence and care utilization.
objectiveTo describe survivors' preferences for care and factors associated with preferred and actual care.
designCross-sectional analysis of participants in a longitudinal study using mailed questionnaires.
participantsSurvivors of ten common cancers (n = 2,107, mean years from diagnosis 8.9). MAIN MEASURES: (1) Survivors' preferences for primary care physician (PCP) and oncologist responsibilities across four types of care: cancer follow-up, cancer screening, preventive health, and comorbid conditions. (2) Survivor-reported visits to PCPs and oncologists. KEY
resultsThe response rate was 42.1%. Most long-term survivors preferred PCPs and oncologists share care for cancer follow-up (63%) and subsequent screening (65%), while preferring PCP-led preventive health (77%) and comorbid condition (83%) care. Most survivors (88%) preferred oncologists involved in cancer follow-up care, but only 60% reported an oncologist visit in the previous 4 years, and 96% reported a PCP visit in the previous 4 years. In multivariable regressions, those with higher fear of cancer recurrence were less likely to prefer PCP-led cancer follow-up care (OR = 0.96, CI = 0.93-0.98), as did survivors with advanced cancer stage (OR = 0.56, CI = 0.39-0.79). Those with higher fear of recurrence (OR = 1.03, CI = 1.01-1.04) or who preferred oncologist-led cancer follow-up care (OR = 2.08, CI = 1.63-2.65) had greater odds of seeing an oncologist in the last 4 years.
conclusionsMost cancer survivors preferred PCPs and oncologists share care for cancer follow-up and screening, yet many had not seen an oncologist recently. Survivors preferred PCP-led care for other preventive services and management of comorbid conditions. These findings highlight the important role PCPs could play in survivor care, suggesting the need for PCP-oriented education and health system policies that support high-quality PCP-led survivor care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.