Evidence map›Paper›PMID 31367203›Full record

ArticleInternational journal of integrated care2019

What is Important to Older People with Multimorbidity and Their Caregivers? Identifying Attributes of Person Centered Care from the User Perspective.

Kerry Kuluski, Allie Peckham, Ashlinder Gill, Dominique Gagnon, Cecilia Wong-Cornall, Ann McKillop, John Parsons, Nicolette Sheridan

Abstract read
In one paragraph

Article in International journal of integrated care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
35citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

35 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
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  9. Review
  10. 'Safety is about partnership': Safety through the lens of patients and caregivers.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  11. Dilemmas in rehabilitation and patient strategies in an intensive home intervention: a follow-up study.International journal of qualitative studies on health and well-being · 2023
    Article
  12. Article
  13. Article
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  15. Assessing the experience of person-centred coordinated care of people with chronic conditions in the Netherlands: Validation of the Dutch P3CEQ.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  16. Article
  17. Article
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  19. Priorities and preferences for care of people with multiple chronic conditions.Health expectations : an international journal of public participation in health care and health policy · 2021
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  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Kerry KuluskiInstitute for Better Health, Trillium Health Partners and University of Toronto, CA.
Allie PeckhamDalla Lana School of Public Health, University of Toronto, CA.
Ashlinder GillDalla Lana School of Public Health, University of Toronto, CA.
Dominique GagnonUniversité du Québec en Abitibi Témiscamingue, CA.
Cecilia Wong-CornallUniversity of Auckland, NZ.
Ann McKillopUniversity of Auckland, NZ.
John ParsonsUniversity of Auckland, NZ.
Nicolette SheridanMassey University, NZ.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionHealth systems are striving to design and deliver care that is 'person centred'-aligned with the needs and preferences of those receiving it; however, it is unclear what older people and their caregivers value in their care. This paper captures attributes of care that are important to older people and their caregivers.

methodsThis qualitative descriptive study entailed 1-1 interviews with older adults with multimorbidity receiving community based primary health care in Canada and New Zealand and caregivers. Data were analyzed to identify core attributes of care, important to participants.

findingsFeeling heard, appreciated and comfortable; having someone to count on; easily accessing health and social care; knowing how to manage health and what to expect; feeling safe; and being independent were valued. Each attribute had several characteristics including: being treated like a friend; having contact information of a responsive provider; being accompanied to medical and social activities; being given clear treatment options including what to expect; having homes adapted to support limitations and having the opportunity to participate in meaningful hobbies.

conclusionsAttributes of good care extend beyond disease management. While our findings include activities that characterize these attributes, further research on implementation barriers and facilitators is required.

Indexed as

CanadacaregivermultimorbidityNew Zealandpatient experienceperson centered careprimary health carequalitative

Identifiers

PMID31367203
PMCPMC6659759

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.