ArticleGastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and Associates
Patient Understanding of "Flare" and "Remission" of Inflammatory Bowel Disease.
Article in Gastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and Associates. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- Latent profiles of self-management behavior and associated factors among Chinese patients with ulcerative colitis.Frontiers in public health · 2026Article
- Patient reported outcome measures relevant to asthma remission: scoping review protocol.MethodsX · 2025Article
- A literature survey on follow-up definitions on the use of infliximab in Crohn's disease.Therapeutic advances in gastroenterology · 2025Review
- Managing patients' reports of abdominal pain and irritable bowel syndrome-like symptoms during quiescent inflammatory bowel disease: a role for shared sensemaking.British journal of pain · 2024Article
- Plants with Anti-Ulcer Activity and Mechanism: A Review of Preclinical and Clinical Studies.Drug design, development and therapy · 2024Review
- Fecal calprotectin level is nonlinearly associated with GI pathogen detection in patients with and without inflammatory bowel disease.Journal of clinical microbiology · 2023Article
- Concordance and Discordance Between Patient-reported Remission, Patient-reported Outcomes, and Physician Global Assessment.Inflammatory bowel diseases · 2023Article
- A Missing Piece of the Puzzle: Patient and Provider Perspectives on Pain Management Needs and Opioid Prescribing in Inflammatory Bowel Disease Care.Crohn's & colitis 360 · 2022Article
- Low Subjective Wellbeing Is Associated with Psychological Distress in People Living with Inflammatory Bowel Disease.Digestive diseases and sciences · 2022Article
- Mindfulness Practice Is Associated With Subjective Wellbeing Homeostasis Resilience in People With Crohn's Disease but Not Ulcerative Colitis.Frontiers in psychiatry · 2022Article
- Reconstruction of individual, social, and professional life: Self-management experience of patients with inflammatory bowel disease.Journal of education and health promotion · 2021Article
- Article
- Development and Examination of an Educational Program Combining E-Learning and Face-to-Face Training That Nurtures Inflammatory Bowel Disease Nurse Specialists.Inflammatory intestinal diseasesArticle
- Factors of Self-Care Agency in Patients with Inflammatory Bowel Disease in Japan.Inflammatory intestinal diseasesArticle
- A Systematic Review of Self-Management Interventions for Patients with Inflammatory Bowel Disease.Inflammatory intestinal diseasesReview
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
Patients with inflammatory bowel disease have adopted medical jargon terms of "flare" and "remission," but what they mean by these terms is ill-defined and may have implications for nurse-patient communication and treatment expectancy. The aim of this study was to elicit patients' understanding of "flare" and "remission." Individuals with self-reported inflammatory bowel disease were recruited through social media. A web-based survey, with closed and open-ended questions, was administered. Conventional content analysis was used to evaluate respondents' perceptions of jargon terms. A word cloud was generated to augment analysis by visualization of word use frequency. A majority of the 34 respondents had a symptom-focused understanding and described these terms as alternating states. Various symptoms were understood to signify "flare," which was largely attributed to lifestyle factors. Corroborated by the word cloud, there was rare mention of inflammation or tissue damage. This study demonstrates that an understanding of "flare" and "remission" by patients with inflammatory bowel disease is largely symptom-based. The role of inflammation, medication failure, and targets of inflammatory bowel disease treatment beyond symptom control are not currently well known to patients with inflammatory bowel disease. To create a shared understanding of symptoms and treatment goals between the patient and the nurse, patient education on emerging expectations of inflammatory bowel disease care should be prioritized.
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