ArticleAmerican journal of Alzheimer's disease and other dementias2019
Adapting the Resilience Framework for Family Caregivers of Hospice Patients With Dementia.
Article in American journal of Alzheimer's disease and other dementias, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 31 citations in OpenAlex.
- Caregiver-reported barriers and facilitators to hospice enrollment for persons with dementia: A systematic review of qualitative evidence.Palliative medicine · 2025Pooled it
- Towards conceptual convergence: A systematic review of psychological resilience in family caregivers of persons living with chronic neurological conditions.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- When Is the Best Time to Deliver Supportive Interventions to Hospice Family Caregivers? A Multi-Method Study.The Gerontologist · 2025Trial
- Meaning and Influencing Factors of a Good Death for Community-Dwelling Individuals With Dementia: An Integrative Review.International journal of older people nursing · 2026Review
- Invisible Pillars With Hidden Burdens: A Scoping Review on the Challenges of Informal Caregivers for Older Adults in Home-Based Palliative Care.Journal of palliative care · 2026Article
- Loneliness and perceived stress in family caregivers of older adults with disabilities: the mediating role of psychological resilience.BMC geriatrics · 2026Article
- Exploring the Support Needs of Chinese Family Carers of People Living with Dementia in New Zealand during the COVID-19 Pandemic: A Resilience Resources Framework Perspective.International journal of environmental research and public health · 2024Article
- The Depression Anxiety Stress Scale 8: investigating its cutoff scores in relevance to loneliness and burnout among dementia family caregivers.Scientific reports · 2024Article
- "Each Day We Lose a Little More": Visual Depictions of Family Caregiving for Persons with Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- A continuum of languishing to flourishing: exploring experiences of psychological resilience in multiple sclerosis family caregivers.International journal of qualitative studies on health and well-being · 2022Article
- Resilience and caregiving ability among caregivers of people with stroke: The mediating role of uncertainty in illness.Frontiers in psychiatry · 2022Article
- Cognitive Resilience in Brain Health and Dementia Research.Journal of Alzheimer's disease : JAD · 2022Review
- Evaluation of Psychosocial Pathways to Family Adaptation of Chinese Patients With Liver Cancer Using the McCubbin's Family Resilience Model.Frontiers in psychiatry · 2021Article
- Factor analysis of the Resilience Scale for Brazilian caregivers of people with Alzheimer's disease.Trends in psychiatry and psychotherapyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
Family caregivers face ongoing, formidable stress and burden. Caregivers need sustainable support to maintain resilience. We aim to identify challenges, possible solutions that are resources for resilience, and expected consequences from the perspective of 39 family caregivers of hospice patients with dementia. The resilience framework was used to guide the coding and synthesis of the qualitative data. Identified challenges included difficulties in communication, providing care and decision-making, lack of knowledge, emotional challenges, concern about care facility selection, death with dignity, and lack of public awareness. Resilience resources for caregiving challenges were identified at the individual, community, and societal levels. Anticipated benefits of using these resources included the ability to provide better care and have a better quality of life for both patients and caregivers. The findings of this study can guide the design and implementation of supportive interventions designed for family caregivers of hospice patients with dementia to bolster available resilience resources.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.