ArticleJBRA assisted reproduction2020
Using social media to educate women and healthcare providers on endometriosis: preliminary results.
Article in JBRA assisted reproduction, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed.
- Interpretations of Menstrual Blood Appearance and Diagnostic Potential Among Social Media Users: Cross-Sectional Mixed Methods Social Media Listening Study.Journal of medical Internet research · 2026Article
- How Women with Endometriosis Use Social Media for Support and Self-Management: An Analysis of Reddit Content.International journal of environmental research and public health · 2025Article
- Informational support for women with endometriosis: a scoping review.BMC women's health · 2025Article
- Users' Concerns About Endometriosis on Social Media: Sentiment Analysis and Topic Modeling Study.Journal of medical Internet research · 2023Article
- Examining the Influence on Perceptions of Endometriosis via Analysis of Social Media Posts: Cross-sectional Study.JMIR formative research · 2022Article
- Clinical efficacy of turtle shell decocted pills for endometriosis and their influence on cellular immunity.American journal of translational research · 2022Article
- Gynecology Meets Big Data in the Disruptive Innovation Medical Era: State-of-Art and Future Prospects.International journal of environmental research and public health · 2021Review
- The virtual infertility community: a qualitative analysis of patient experiences shared on Instagram.Journal of assisted reproduction and genetics · 2021Article
- Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis study aimed to evaluate the performance of our Facebook fan page and compare it to similar pages.
methodsThe authors reviewed page-specific metrics provided by Facebook, including number of fans, their age and sex, and country of origin; number of views, likes, and shares tied to our posts. A search for similar fan pages using keyword "endometriosis" found pages in Portuguese, English, and Spanish. They were analyzed for country of origin, authors, number of fans and posts, and were compared to our page.
resultsOur fan page went online on April 2016 and 127 posts have been published up to December 2017. Most of its 1746 fans (89% women; 11% men) were Brazilians (n=1677). Our audience comprised primarily women aged 25-34 (39%) and 35-44 (30%) years. The most viewed posts discussed thrombosis and oral contraceptives (n =11078); continuous use of oral contraceptives (n=6448); deep endometriosis (n=4425); intrauterine levonorgestrel system (n=4045); IVF and endometriosis (n=2885); and endometriosis and cancer (n=2431). Our search found 399 Facebook pages from 44 different countries. The United States (n=81), Brazil (n=49), and the United Kingdom (n=46) topped the list of countries hosting pages, while most of the fan pages were written in English. The majority of the pages were active and 20% claimed they were based on science. Physicians administered four of the 10 most popular pages. Page heterogeneity prevented comparisons between them.
conclusionMen and women have visited our Facebook fan page to obtain information on endometriosis. The pages found in our search were exceedingly heterogeneous and were not compared. Developing pages with sound information is an important step toward educating individuals about endometriosis and helping them make informed choices on available treatments.
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Registered trials
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