ArticleJournal of the American Medical Informatics Association : JAMIA2019
Online health community experiences of sexual minority women with cancer.
Article in Journal of the American Medical Informatics Association : JAMIA, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- How Cancer Online Support Groups Work, for Whom, and in What Circumstances: Realist Review.Journal of medical Internet research · 2026Review
- Attitudes and Willingness to Participate in Drug Clinical Trials Among Patients With Cancer: Multistage Qualitative Study.Journal of medical Internet research · 2026Article
- Emotion Expression in Breast Cancer Support Seeking: Empirical Study of an Online Community.JMIR medical informatics · 2026Article
- Barriers to Screening for Anal Dysplasia and Strategies to Overcome Them.Clinics in colon and rectal surgery · 2026Review
- The Role of Technology in Online Health Communities: A Study of Information-Seeking Behavior.Healthcare (Basel, Switzerland) · 2024Article
- Self-Expression and Sharing around Chronic Illness on TikTok.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023Article
- Online health community for change: Analysis of self-disclosure and social networks of users with depression.Frontiers in psychology · 2023Article
- Maybe they had a bad day: how LGBTQ and BIPOC patients react to bias in healthcare and struggle to speak out.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- The positive energy of netizens: development and application of fine-grained sentiment lexicon and emotional intensity model.Current psychology (New Brunswick, N.J.) · 2022Article
- Consumer perceptions of telehealth for mental health or substance abuse: a Twitter-based topic modeling analysis.JAMIA open · 2022Article
- Evolutionary Overview of Consumer Health Informatics: Bibliometric Study on the Web of Science from 1999 to 2019.Journal of medical Internet research · 2021Review
- Categorising patient concerns using natural language processing techniques.BMJ health & care informatics · 2021Article
- From Patient Engagement to Precision Oncology: Leveraging Informatics to Advance Cancer Care.Yearbook of medical informatics · 2020Review
- Health informatics and health equity: improving our reach and impact.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- Evaluating online doctor-patient communication quality and its effects: Text analysis approach.Digital healthArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
objectiveThe study sought to explore online health communities (OHCs) for sexual minority women (SMW) with cancer by conducting computational text analysis on posts. MATERIALS AND
methodsEight moderated OHCs were hosted by the National LGBT Cancer Network from 2013 to 2015. Forty-six SMW wrote a total of 885 posts across the OHCs, which were analyzed using Linguistic Inquiry and Word Count and latent Dirichlet allocation. Pearson correlation was calculated between Linguistic Inquiry and Word Count word categories and participant engagement in the OHCs. Latent Dirichlet allocation was used to derive main topics.
resultsParticipants (average age 46 years; 89% white/non-Hispanic) who used more sadness, female-reference, drives, and religion-related words were more likely to post in the OHCs. Ten topics emerged: coping, holidays and vacation, cancer diagnosis and treatment, structure of day-to-day life, self-care, loved ones, physical recovery, support systems, body image, and symptom management. Coping was the most common topic; symptom management was the least common topic. DISCUSSION: Highly engaged SMW in the OHCs connected to others via their shared female gender identity. Topics discussed in these OHCs were similar to OHCs for heterosexual women, and sexual identity was not a dominant topic. The presence of OHC moderators may have driven participation. Formal comparison between sexual minority and heterosexual women's OHCs are needed.
conclusionsOur findings contribute to a better understanding of the experiences of SMW cancer survivors and can inform the development of tailored OHC-based interventions for SMW who are survivors of cancer.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.