ArticleJNCI cancer spectrum2018
"Still a Cancer Patient"-Associations of Cancer Identity With Patient-Reported Outcomes and Health Care Use Among Cancer Survivors.
Article in JNCI cancer spectrum, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Who cites it
18 citing papers in PubMed, 50 citations in OpenAlex.
- Cancer Survivorship Care in Bavaria: General Practitioners' Perspectives and a Regional Capacity Analysis.Deutsche medizinische Wochenschrift (1946) · 2026Article
- Cross-sectional associations of proteomic age acceleration with self-reported physical and mental health and depression symptoms among those with and without cancer.Journal of cancer survivorship : research and practice · 2026Article
- Article
- Understanding colorectal cancer-related stigma and its impact on cancer survivors in South-West Nigeria: a qualitative study of patients, caregivers, and healthcare professionals.Journal of cancer survivorship : research and practice · 2025Article
- Cured but not well - haematological cancer survivors' experiences of chemotherapy-induced peripheral neuropathy in everyday life: a phenomenological-hermeneutic study.Journal of cancer survivorship : research and practice · 2025Article
- Cancer-related identity and advanced old age - analysis of prostate cancer survivors after radical prostatectomy over the age of 75.BMC geriatrics · 2025Article
- Beyond pink ribbons: The unmet needs of women with breast cancer.Journal of medical radiation sciences · 2025Article
- How the self-concept structures social role learning: insights from computational models.Royal Society open science · 2025Article
- Lifetime prevalence of cancer in Germany between 2010 and 2019: An analysis based on aggregated data.PloS one · 2025Article
- Cancer-related self-perception in men affected by prostate cancer after radical prostatectomy.Journal of cancer survivorship : research and practice · 2024Article
- Out-of-pocket payments and loss of income among long-term breast cancer survivors in Germany: a multi-regional population-based study.Journal of cancer survivorship : research and practice · 2023Article
- A new self-understanding as chemo sufferer - a phenomenological study of everyday life with chemotherapy induced neuropathy among survivors after colorectal cancer.International journal of qualitative studies on health and well-being · 2022Article
- Being away from home for cancer treatment: a qualitative study of patient experience and supportive care needs during radiation therapy.Journal of medical radiation sciences · 2022Article
- Identifying breast cancer recurrence histories via patient-reported outcomes.Journal of cancer survivorship : research and practice · 2022Article
- Diversity of cancer-related identities in long-term prostate cancer survivors after radical prostatectomy.BMC cancer · 2021Article
- Factors Associated with "Survivor Identity" in Men with Breast Cancer.Current oncology (Toronto, Ont.) · 2021Article
- Impact of the COVID-19 Pandemic on Patient-Reported Outcomes of Breast Cancer Patients and Survivors.JNCI cancer spectrum · 2021Article
- Biographical Renewal and its Facilitators in Cancer Survivorship: A Conceptual Paper.Indian journal of palliative careReview
Corrections and comments
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Authors and funding
13 authors at 7 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe concept of cancer identity is gaining attention as more individuals are living with cancer as a chronic illness. Research is limited, and results suggest that a self-identity as "cancer patient" rather than a "cancer survivor" is associated with depression and lower health-related quality of life (HRQL). We aimed to identify factors associated with patient identity and investigate the associations between patient identity and treatment, health care use, psychosocial distress, and HRQL.
methodsWe used data from the population-based CAncEr Survivorship: A multi-Regional (CAESAR) study. Breast, colorectal, and prostate cancer survivors diagnosed during 1994-2004 completed a postal survey on patient identity, HRQL, psychological distress, and health care use in 2009-2011. We calculated odds ratios and the 95% confidence interval of having a patient identity. Analyses were adjusted for age, sex, education, and cancer stage, where appropriate.
resultsOf the 6057 respondents, colorectal cancer survivors (25%) were least likely to consider themselves patients, and prostate cancer survivors (36%) the most likely. Being male, younger age, comorbidity, higher cancer stage, and disease recurrence were associated with patient identity. Treatment was associated with patient identity, except among female colorectal cancer survivors. Having a patient identity was associated with higher health care use within the past 12 months. Survivors who still consider themselves patients were more likely to be depressed and reported significantly lower HRQL.
conclusionsA significant proportion of cancer survivors still consider themselves patients five to 15 years postdiagnosis. Sensitivity to individuals' self-identity should be considered when exploring their cancer experience.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.