Evidence map›Paper›PMID 31355974›Full record

ArticleAmerican journal of community psychology2019

Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.

Myra Parker, Cynthia Pearson, Caitlin Donald, Celia B Fisher

Abstract read
In one paragraph

Article in American journal of community psychology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed.

  1. Lessons on Resilient Research: Adapting the Tribal Turning Point Study to COVID-19.American Indian and Alaska native mental health research (Online) · 2022
    Trial
  2. A Model for Clinician and Staff Education in the Engagement of American Indians in Genomic Research.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  3. A scoping review of Indigenous community-based research practices, guidelines, and ethical standards.Canadian journal of public health = Revue canadienne de sante publique · 2026
    Article
  4. A Proposal for Addressing Bioethical Concerns Along the 10-Step Framework for Community Engagement.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Using experiential learning and authentic assessments to support students to become competent health promotion practitioners.Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals · 2022
    Review
  12. Article
  13. Article
  14. Review
  15. Article
  16. Extending Research Protections to Tribal Communities.The American journal of bioethics : AJOB · 2021
    Article
  17. Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.American Indian and Alaska native mental health research (Online) · 2021
    Article
  18. Prevalence of Moderate and Acute Suicidal Ideation among a National Sample of Tribal College and University Students 2014-2015.Archives of suicide research : official journal of the International Academy for Suicide Research
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Myra ParkerDepartment of Psychiatry and Behavioral Sciences, Center for the Study of Health and Risk Behavior, School of Medicine, University of Washington, Seattle, WA, USA.ORCID 0000-0003-4871-4304
Cynthia PearsonSchool of Social Work, University of Washington, Seattle, WA, USA.
Caitlin DonaldPrevention Research Center, Oregon Health Sciences University, Portland, OR, USA.
Celia B FisherRose Hill Campus, Fordham University, Bronx, NY, USA.

Funding

Increasing AIAN Research Engagement through a Culturally Adapted Ethics TrainingR01HD082181 · NICHD · UNIVERSITY OF WASHINGTON · PI PEARSON, CYNTHIA RENEE · 2014 to 2017
$1.3M
Eunice Kennedy Shriver National Institute of Child Health and Human DevelopmentNICHD NIH HHS R01 HD082181
6 · The paper itself

Abstract

Individuals responsible for carrying out research within their diverse communities experience a critical need for research ethics training materials that align with community values. To improve the capacity to meet local human subject protections, we created the research Ethics Training for Health in Indigenous Communities (rETHICS), a training curriculum aligned within American Indian and Alaska Native (AI/AN) context, culture, and community-level ethical values and principles. Beginning with the Belmont Report and the Common Rule that defines research with human subjects (46 CFR 45), the authors convened three different expert panels (N = 37) to identify Indigenous research values and principles common across tribal communities. The resulting culturally grounded curriculum was then tested with 48 AI/AN individuals, 39 who also had recorded debriefing interviews. Using a thematic analysis, we coded the qualitative feedback from the expert panel discussions and the participant debriefings to assess content validity. Participants identified five foundational constructs needed to ensure cultural-grounding of the AI/AN-specific research training curriculum. These included ensuring that the module was: (a) framed within an AI/AN historical context; (b) reflected Indigenous moral values; (c) specifically linked AI/AN cultural considerations to ethical procedures; (d) contributed to a growing Indigenous ethics; and (e) provided Indigenous-based ethics tools for decision making. Using community-based consultation and feedback from participants led to a culturally grounded training curriculum that teaches research ethical principles and procedures for conducting research with AI/ANs. The curriculum is available for free and the community-based process used can be adapted for other cultural groups.

Indexed as

American Indian or Alaska NativeCommunity-Based Participatory ResearchEthics, ResearchCultural CompetencyCurriculumDecision MakingHumansModels, TheoreticalNeeds AssessmentAlaska NativesAmerican IndiansCommunity-based participatory researchEthicsIndigenous communitiesTraining curriculum

Identifiers

PMID31355974
PMCPMC6750973

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.