ArticleCancer2019
Patient and caregiver perceptions of lymphoma care and research opportunities: A qualitative study.
Article in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Factors of emotional distress in lymphoma: A systematic review.Cancer medicine · 2023Pooled it
- Living with or beyond lymphoma: A rapid review of the unmet needs of lymphoma survivors.Psycho-oncology · 2022Pooled it
- Perspectives of Lymphoma Survivors and Oncology Care Providers on Survivorship Care: A Qualitative Study.JCO oncology practice · 2025Article
- Posttreatment health interventions for adult cancer survivors and their families: an integrated review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Review
- Communication between Caregivers of Adults with Cancer and Healthcare Professionals: a Review of Communication Experiences, Associated Factors, Outcomes, and Interventions.Current oncology reports · 2024Review
- Patient and public involvement in cancer research: A scoping review.Cancer medicine · 2023Article
- Hodgkin lymphoma survivor perspectives on their engagement in treatment decision-making and discussion of late effects.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Using Critical Race Theory to Understand Trial Participation Among Black Individuals With Systemic Lupus Erythematosus: A Qualitative Study of Patients and Caregivers.Arthritis care & research · 2021Article
- Perceptions of clinical care and research among African-American patients with lymphoma.Leukemia & lymphoma · 2021Article
- An exploration of how developers use qualitative evidence: content analysis and critical appraisal of guidelines.BMC medical research methodology · 2020Article
- Unmet Supportive Care Needs of Patients with Hematological Malignancies: A Systematic Review.Asia-Pacific journal of oncology nursingReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundAlthough the number of lymphoma survivors has increased, the needs and research priorities of survivors and their caregivers rarely are examined and addressed. Determining the needs and priorities for this population requires an assessment of the attitudes and experiences of patients and caregivers. The authors conducted a qualitative study with lymphoma survivors and their caregivers to determine care needs and research priorities.
methodsIn the first phase, 2 semistructured focus groups were conducted with 15 lymphoma survivors and their caregivers. In phase 2, a total of 19 individual semistructured telephone interviews were conducted with lymphoma survivors and their caregivers. In both phases, participants discussed cancer experiences and research priorities. All interviews were transcribed. MAXQDA software (version 18.0.8) was used for coding and identifying themes.
resultsThe majority of participants felt disconnected from their clinical care team due to a lack of communication. Focus group participants noted a lack of information regarding diagnoses, treatment, research, and survivorship care. Participants coped with fear through strong social support and fostering relationships with their clinical care teams. Some caregivers felt completely ignored by clinicians. Participants expressed interest in research, but had difficulty finding relevant studies. Several interviewees desired holistic and survivorship-oriented research and more studies regarding quality of life and mental health.
conclusionsThe results of the current study identified unmet needs in clinical care and patient-oriented research, including needs for a focus on quality of life after treatment, communication between patients and the scientific community, and emotional well-being. Health care professionals can use these data to provide care delivery, supportive services, and research that meets the needs of lymphoma survivors and their caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.