Evidence map›Paper›PMID 31352426›Full record

ArticleBMJ open2019

Barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people at end-of-life: a mixed methods systematic review protocol.

Katie Greenfield, Simone Holley, Daniel Eric Schoth, Emily Harrop, Richard Howard, Julie Bayliss, Lynda Brook, Satbir Jassal, Margaret Johnson, Ian Wong and 1 more

Abstract read
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Katie GreenfieldDepartment of Psychology, University of Southampton, Southampton, UK.
Simone HolleyDepartment of Psychology, University of Southampton, Southampton, UK.
Daniel Eric SchothDepartment of Psychology, University of Southampton, Southampton, UK.
Emily HarropHelen & Douglas House Hospices, Oxford, UK.
Richard HowardDepartment of Anaesthesia and Pain Medicine, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Julie BaylissThe Louis Dundas Centre, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Lynda BrookSpecialist Palliative Care Team, Alder Hey Children's Hospital, Liverpool, UK.
Satbir JassalRainbows Hospice for Children and Young People, Loughborough, UK.
Margaret JohnsonPatient Representative c/o Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Ian WongSchool of Pharmacy, University College London, London, UK.
Christina LiossiDepartment of Psychology, University of Southampton, Southampton, UK.ORCID 0000-0003-0627-6377

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThis protocol describes the objective and methods of a systematic review of barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in infants, children and young people (ICYP) at end-of-life. METHODS AND ANALYSIS: The Cochrane Library, PROSPERO, CINAHL, MEDLINE, PsycINFO, Web of Science Core Collection, ProQuest Dissertations & Theses Database, Evidence Search and OpenGrey will be electronically searched. Reference screening of relevant articles and inquiries to researchers in the field will be undertaken. Studies will be selected if they apply qualitative, quantitative or mixed-methods designs to explore barriers and facilitators experienced by patients, carers and healthcare professionals when managing symptoms in ICYP at end-of-life.Articles will be screened by title and abstract by one reviewer with a second reviewer assessing 10% of the articles. Both reviewers will read and screen all remaining potentially relevant articles. For included articles, one reviewer will extract study characteristics and one will check this.Both reviewers will undertake independent quality assessments of included studies using established and appropriate checklists including The Critical Appraisal Skills Programme Qualitative Checklist; The evaluative criteria of credibility, transferability, dependability and confirmability; The Quality Assessment Tool for Quantitative Studies, and The Mixed Methods Appraisal Tool. Data synthesis methods will be decided after data extraction and assessment. ETHICS AND DISSEMINATION: This review will inform our understanding of symptom management in ICYP at end-of-life. The findings will be reported in a peer-reviewed journal and presented at conferences. The study raises no ethical issues. PROSPERO REGISTRATION NUMBER: CRD42019124797.

Indexed as

Attitude of Health PersonnelClinical CompetenceHumansPalliative CarePatient SatisfactionPediatricsQualitative ResearchSystematic Reviews as TopicTerminal Careend of life carepaediatric palliative carepain managementqualitative researchsymptom management

Identifiers

PMID31352426
PMCPMC6661662

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.