SynthesisBehavioral medicine (Washington, D.C.)
Ubiquitous Yet Unclear: A Systematic Review of Medical Mistrust.
Synthesis in Behavioral medicine (Washington, D.C.). The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 171 papers, 8 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
171 citing papers in PubMed, 8 syntheses or guidelines pooled it.
- Why do people trust (or mistrust) health organizations? A systematic review.International journal for equity in health · 2026Pooled it
- Advancing equity and value in United States healthcare: an umbrella review.International journal for equity in health · 2026Pooled it
- A Review of Medical Mistrust Across the Cancer Continuum of Care and Current Interventions.Journal of community health · 2025Pooled it
- Pooled it
- A Systematic Review of Interpersonal Interactions Related to Racism in Studies Assessing Breast and Gynecological Cancer Health Outcomes Among Black Women.Journal of racial and ethnic health disparities · 2024Pooled it
- Access improvement in healthcare: a 12-step framework for operational practice.Frontiers in health services · 2024Pooled it
- Medical mistrust as a barrier to HIV prevention and care.Journal of behavioral medicine · 2023Pooled it
- Surveying Public Perceptions of Artificial Intelligence in Health Care in the United States: Systematic Review.Journal of medical Internet research · 2023Pooled it
- Research Burden in Pediatric Cancer: A Mixed Methods Study From the PediQUEST Response Trial.Journal of pain and symptom management · 2025Trial
- Group-Based Medical Mistrust and Healthcare Utilization Among Racially and Ethnically Minoritized Adults.Journal of racial and ethnic health disparities · 2026Article
- Perceptions, attitudes, and concerns of underrepresented groups regarding the use of big data in children and young people's healthcare research - A systematic literature review.PLOS digital health · 2026Article
- Challenges to Adolescent Pre-exposure Prophylaxis (PrEP) Uptake: an Exploration of Black and Latino American Parents' Beliefs, Attitudes, and Receptivity to PrEP.Journal of racial and ethnic health disparities · 2026Article
- Insights Into Working Alliance: Predictors of Patient-Perceived Bond With Genetic Counselors Among a Diverse, Multispecialty Sample.Journal of genetic counseling · 2026Article
- Semantic Similarity Search Approach to Extract Exemplars of Stigmatizing and Positive Language in Obstetric Clinical Notes: Exploratory Study.JMIR medical informatics · 2026Article
- Repeat At-Home Saliva Collection to Measure Cortisol Awakening Response (CAR): Protocol Feasibility Study Among Black Women With Histories of Abuse.Interactive journal of medical research · 2026Article
- Opioid overdose mortality among black people receiving a community- & theory-based multilevel opioid overdose intervention in Indianapolis, U.S.A., 2022-2025.Preventive medicine reports · 2026Article
- Medical mistrust, health system distrust, and their associations with healthcare delay and cancer screening attitudes in primary care.BMC health services research · 2026Article
- Equity in Neurotoxicity Care in the Era of Cancer Immunotherapy.Seminars in neurology · 2026Article
- Residential Context and Survival Disparities in Black and White Women With Ovarian Cancer.JAMA network open · 2026Observational
- Immigrant and Mistrust in the Healthcare Setting: A Thematic Review.Journal of immigrant and minority health · 2026Review
111 more citing papers are in PubMed but not listed here.
Corrections and comments
- Erratum issued
Authors and funding
5 authors.
Funding
Abstract
Peer-reviewed articles (n = 124) examining associations between medical mistrust (MM) and health outcomes from four databases, between January 1998 and May 2018, were reviewed; 36 qualitative and 88 quantitative studies met the inclusion criteria. The Williams and Mohammed framework guided our narrative synthesis of the studies; it argues that basic causes (e.g., biased institutions) affect the social status of marginalized groups which in turn effects multiple proximal pathways leading to responses and poor health. Most studies were cross-sectional with US-based samples. The MM in qualitative studies were categorized as interpersonal (n = 30), systemic (n = 22), and/or vicarious (n = 18); 25% did not explicitly note the basic causes of MM and race/ethnicity was often confounded with socioeconomic status (SES). All but three studies discussed an association between MM and a behavior response; no study focused on an actual health outcome. Most quantitative studies used multivariate regression analyses; only 15 of the 88 utilized advanced modeling techniques (e.g., mediation). Most (75%) studies did not describe basic causes for MM and 43% utilized low income samples. MM was conceptualized as a predictor/proximal pathway (in 73 studies) associated with a variety of responses, most commonly behavioral (e.g., diminished adherence); 14 studies found an association between MM and a specific health measure. This review underscores the need for future qualitative studies to place MM central to their research questions as in-depth descriptions of MM were limited. Future quantitative studies should replicate findings using more advanced analytical strategies that examine the relationship between MM and health outcomes.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.