ArticleThe American journal of bioethics : AJOB2019
The Rise of Citizen Science in Health and Biomedical Research.
Article in The American journal of bioethics : AJOB, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 81 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
81 citing papers in PubMed.
- Harnessing Citizen Science to Support Nature-Based Flood Management: A Case Study of Photo Post Engagement in the Limb Brook Catchment, Sheffield, UK.Environmental management · 2026Article
- Transformations in Diabetes Care: Lessons From Commons-Based, Peer-Produced Citizen Science.Sociology of health & illness · 2026Article
- Rising together: exploring sourdough fermentation diversity through co-design in the HealthFerm citizen science initiative.NPJ science of food · 2026Article
- "I'm not a graduate or doctor, yet we are all together:" articulating a partnership model for community-engaged research.Frontiers in public health · 2026Article
- Epistemic agency in self-tracking: a conceptual literature review of quantified self as citizen science for health.Frontiers in public health · 2026Review
- iNaturalist accelerates biodiversity research.Bioscience · 2025Article
- Optimizing the impact of supportive cancer care digital health interventions: considerations for design, development, and evaluation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Review
- Group authorship, an excellent opportunity laced with ethical, legal and technical challenges.Accountability in research · 2025Article
- Article
- The broad range of self-management strategies that people with rheumatic and musculoskeletal conditions apply: an online survey using a citizen science approach.Rheumatology international · 2025Article
- A Qualitative Study of the Ethics of Community Scientists' Role in Environmental Health Research from the Perspective of Community Scientists and Institutional Review Board Staff.Environmental health perspectives · 2025Article
- Ethical integration of citizen science and youth participatory action research: insights from the YouthChronic project.Research involvement and engagement · 2025Article
- Opportunities for microbiology citizen science: lessons learnt from three pilot projects.Access microbiology · 2025Article
- Citizen science approaches in the development of post-stroke physical activity interventions: A scoping review.PloS one · 2025Article
- A qualitative study on the facilitators and barriers to adopting the N-of-1 trial methodology as part of clinical practice: potential versus implementation challenges.International journal of qualitative studies on health and well-being · 2024Article
- Co-Designing a Digital App to Support Young People's Patient and Public Involvement and Engagement (VoiceIn): Development and Usability Study.JMIR human factors · 2024Article
- Citizen involvement in research on technological innovations for health, care or well-being: a scoping review.Health research policy and systems · 2024Article
- Co-designing a wiki-based community knowledge management system for personal science.Royal Society open science · 2024Article
- Community-Partnered Research appraisal tool for conducting, reporting and assessing community-based research.BMJ open · 2024Review
- Acceptance of a Digital Assistant (Anne4Care) for Older Adult Immigrants Living With Dementia: Qualitative Descriptive Study.JMIR aging · 2024Article
21 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research.
Indexed as
Identifiers
31339831What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.