Evidence map›Paper›PMID 31328612›Full record

ArticleJournal of empirical research on human research ethics : JERHRE2019

Attitudes Regarding Enrollment in a Genetic Research Project: An Informed Consent Simulation Study Comparing Views of People With Depression, Diabetes, and Neither Condition.

Jane Paik Kim, Katie Ryan, Laura Weiss Roberts

Open access · greenAbstract read
In one paragraph

Article in Journal of empirical research on human research ethics : JERHRE, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.2field-weighted citation impact, top 37% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 2 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 1 institution in 1 country.

Jane Paik Kim1 Stanford University, Palo Alto, CA, USA.
Katie Ryan1 Stanford University, Palo Alto, CA, USA.
Laura Weiss Roberts1 Stanford University, Palo Alto, CA, USA.ORCID 0000-0003-4270-253X
Palo Alto University · US

Funding

Ethics and Safeguards in Psychiatric ResearchR01MH074080 · NIMH · STANFORD UNIVERSITY · PI ROBERTS, LAURA W · 2006 to 2010
$2.6M
NIMH NIH HHS R01 MH074080
6 · The paper itself

Abstract

In this study, participants with a self-reported history of depression, diabetes, or no illness underwent a simulated informed consent process for a hypothetical genetic study related to depression or diabetes. Participants completed a survey assessing their perceived understanding of the research process, perceptions of its risks and benefits, their satisfaction with the informed consent process, and their readiness to make a hypothetical enrollment decision. All participants indicated strong readiness to make an enrollment decision regarding the research characterized in the simulation. Participants reported understanding the consent process relatively well and being generally satisfied with it. Greater concerns were expressed regarding psychosocial risks than biological risks for genetic studies on mental disorders. Our study documented positive attitudes toward volunteering for research that involved the collection of genetic data.

Indexed as

ComprehensionDecision MakingGenetic ResearchInformed ConsentResearch SubjectsAdultDepressionDiabetes MellitusFemaleHumansMaleSurveys and Questionnairesattitudesdepressiondiabetesgeneticsinformed consentresearch participation

Identifiers

PMID31328612
PMCPMC6733621
OpenAlexW2964273236

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.